Featured Blog Posts – May 2011 Archive (2)

DuchenneConnect at Work: Helping Families Pursue Genetic Testing

This message is posted to help the community understand the diagnostic odyssey faced by Ryan B, a young man who was diagnosed with muscular dystrophy long before genetic testing was reliable enough to identify the specific cause of his muscle weakness. With today’s fast-breaking PR announcements, promising medical advances to treat many forms of muscular dystrophy are being discussed at a dizzying pace. It is challenging for families to sort through the hype and excitement to determine…

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Added by Vanessa Rangel on May 24, 2011 at 3:14pm — 3 Comments


Staff
Cab ride

Got in the cab at JFK yesterday, tossed my bags at the Indian driver with a few words about the address, while in the middle of a conversation with Kimberly to catch up on stuff. While dodging traffic and seemingly finding alternative routes into the city, I saw the driver looking back via his rear view mirror.  Just as Kimberly and I ended the conversation, he smiled and said "I have a new baby boy."  It felt a little random in a strange way, but then again, I also find the Indian culture a…

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Added by Pat Furlong on May 10, 2011 at 12:31pm — 3 Comments

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