We have been a very busy family over the last few months. School is winding down, and we are really looking forward to a relaxing summer.
We've spend the last 5 months or so getting ready for the Seattle Rock and Roll Marathon and 1/2 Marathon. We have 8 members of Team Wyatt to raise money for Run for Our Sons. We have about 3 weeks left to raise money and so far our total is just over $6300.
I can't wait to share pictures with all my PPMD friends when the race…Continue
Added by Wyatt's Mommy, Melissa on May 29, 2010 at 5:02pm — No Comments
We (PPMD and Cure Duchenne) are working with FDA to organize a Webinar. The purpose of the webinar is education - about…Continue
Added by Pat Furlong on May 25, 2010 at 7:56am — No Comments
Getting ready for the normal high school milestones in our house is always a creative endeavor. At the beginning of April Jon came home from school and said that he wanted to attend Prom. He asked if he could attend the prom without renting a tux. Our goal is to have Jon experience all the normal things kids his age get to experience. I said, yes we should get a tux. The month of April flew by. On…Continue
I am so excited!! My son is graduating from college in two weeks after 4 years. (better than me). He is graduating cum laude from our local universities Honors College.
I just never thought this day would ever come when he was diagnosed 17 years ago...
Added by Rita Felling on May 8, 2010 at 12:36am — No Comments
The wind in my sails may be coming back.
Two things have occurred that provide me with some hope that Ataluren may still be viable.
One was the…Continue
Added by Christine Piacentino on May 7, 2010 at 9:10am — No Comments