Featured Blog Posts – April 2015 Archive (4)


Staff
The “Let’s Get Them Moving” Workshop

On Monday, PPMD’s Founding President Pat Furlong, CEO Dr. John Porter, and SVP of Legislation & Public Policy Annie Kennedy joined Duchenne stakeholders from around the world in a special one-day meeting to discuss robotic technology and the potential it holds for our community. PPMD – together with UPPMD – gathered the best and brightest robotics experts and engineers who are working to apply their innovations to Duchenne. We discussed the variety of technologies currently in…

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Added by PPMD on April 29, 2015 at 10:00am — 1 Comment


Staff
Parent Project Muscular Dystrophy Awards $148,000 Grant to University of Washington

Parent Project Muscular Dystrophy (PPMD) has awarded University of Washington a $148,000 grant to continue the functional analysis of spectrin-like repeats in dystrophin. Led by Stanley C. Froehner, PhD, Sackler professor and chair of the Department of Physiology & Biophysics at University of Washington, this grant will provide funding so that more research can be completed before the team submits to the National Institutes of Health (NIH) for additional…

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Added by PPMD on April 20, 2015 at 11:00am — No Comments


Staff
BioMarin Update

BioMarin has provided the following update on redosing of drisapersen for a new clinical trial. Ambulation will not be an inclusion or exclusion criterion for enrollment, but boys will need to have been previously dosed as part of a clinical trial.…



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Added by Ryan Fischer on April 14, 2015 at 9:00am — No Comments


Staff
Sarepta Update

Earlier this month Sarepta announced a change in leadership, with CMO Ed Kaye taking over as interim CEO.



Following that announcement the team at Sarepta organized a call…

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Added by Ryan Fischer on April 13, 2015 at 11:00am — No Comments

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