Featured Blog Posts – April 2014 Archive (3)

New Duchenne Therapies in Development

As we finalize the agenda for this year’s Connect Conference, I am once again amazed at how much of a challenge it is to squeeze in all of the talks on different therapeutic approaches to treating Duchenne—in fact, there are too many to cover comprehensively this year. Sometimes it’s good to remember that mutation-specific approaches like exon skipping, although promising and…

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Added by Sharon Hesterlee on April 24, 2014 at 12:30pm — 3 Comments


Staff
At Long Last, A Victory!

One Life on this earth is all that we get, whether it is enough or not enough, and the obvious conclusion would seem to be that at the very least we are fools if we do not live it as fully and bravely and beautifully as we can.…

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Added by Pat Furlong on April 21, 2014 at 6:01pm — 1 Comment


Staff
A New Care Guide to Give to Your Provider – Imperatives for Duchenne Care

Unfortunately, the care of people living with Duchenne muscular dystrophy differs from country to country, from state to state, and even from center to center. Email and stories that we get daily confirm that, despite the availability of Care Standards there is still significant practice variability, including centers and locations where clinicians…

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Added by Kathi Kinnett on April 14, 2014 at 1:00pm — 10 Comments

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