Featured Blog Posts – March 2016 Archive (5)


Staff
PPMD is Initial Partner in OnPAR — Online Partnership to Accelerate Research

The National Institutes of Health (NIH) is one of the biggest funders of medical research in the US, and projects it has funded have touched almost every Duchenne therapeutic in development now in some way. In FY2016, the NIH…

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Added by Abby Bronson on March 24, 2016 at 9:30am — No Comments


Staff
FDA Releases New Date for Eteplirsen Ad Comm

At long last we have received information regarding the rescheduled Advisory Committee for Sarepta (eteplirsen). The Ad Comm will take place on Monday, April 25 at the College…

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Added by PPMD on March 10, 2016 at 9:00am — No Comments


Staff
How You Can Participate in Upcoming FDA Advisory Committee Meetings

UPCOMING AD COMMS

Sarepta…

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Added by PPMD on March 10, 2016 at 9:00am — No Comments


Staff
Gene Therapy Today: Notes from PPMD’s Duchenne Gene Therapy Forum



Gene therapy.

Those two words have been tossed around for some time, starting in the late 1990s when several gene therapy trials started, but ended with fatal results. Now, when the field has learned a lot from those initial results and with optimized technologies, we come back to gene…

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Added by Abby Bronson on March 8, 2016 at 12:00pm — 4 Comments


Staff
PPMD Launches the Every Single [One] Tour

For 22 years, PPMD has brought together families with leading experts, care providers, and industry partners through our Annual Connect Conference,…

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Added by PPMD on March 4, 2016 at 10:00am — 1 Comment

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