I always felt a strong connection to the Duchenne community while working at the NIH. As you know, that connection and the incredible work of organizations like PPMD inspired me to jump full-time into the fight to end Duchenne.
Yesterday’s FDA and NIH dystrophin methodology workshop really…Continue
John Porter and I have been invited to participate in the FDA-NIH dystrophin methodology meeting on Friday, March 20. While we said yes, we realize this is a difficult and painful topic for all of us. Dystrophin feels like the brass…Continue
Added by Pat Furlong on March 18, 2015 at 9:30am — No Comments
[NOTE: This blog has been updated as recently as December 14, 2015. Please see the 'UPDATE 12/14/15' section below for more information.]
UPDATE - 12/14/15:
There has been new information regarding the March 2015 recall of Deflazacort batches JL21 and JL28. It seems that these batches were…Continue