I always felt a strong connection to the Duchenne community while working at the NIH. As you know, that connection and the incredible work of organizations like PPMD inspired me to jump full-time into the fight to end Duchenne.
Yesterday’s FDA and NIH dystrophin methodology workshop really cemented that decision for me. Never have I been more proud to…Continue
John Porter and I have been invited to participate in the FDA-NIH dystrophin methodology meeting on Friday, March 20. While we said yes, we realize this is a difficult and painful topic for all of us. Dystrophin feels like the brass ring, the best thing possible, the important foundation on which…Continue
Added by Pat Furlong on March 18, 2015 at 9:30am — No Comments
[NOTE: This blog has been updated as recently as December 14, 2015. Please see the 'UPDATE 12/14/15' section below for more information.]
UPDATE - 12/14/15:
There has been new information regarding the March 2015 recall of Deflazacort batches JL21 and JL28. It seems that these batches were…Continue