Featured Blog Posts – March 2013 Archive (6)


Staff
Parliament/UK Shadow Minister of Health Andrew Burnham

UPDATE

Parliamentary Duchenne Rare Exon Meeting Report 26th March 2013



In Spring of this year, PPMD and other Duchenne stakeholders from around the world, convened a meeting with the UK's Shadow Minister of Health, Andrew Burnham, at Parliament. The purpose was focused on Antisense oligonucleotides (exon skipping) and developing an expedited pathway for all…

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Added by Pat Furlong on March 27, 2013 at 4:30pm — No Comments


Staff
Organizing Your Very Own Fun Run or 5K Event

Help Bring Run for Our Sons to your own backyard.

 

I hear it all the time, “I want to do a fundraiser but not sure what to do or where to start” – I ask “have you thought of doing a 5K or fun run in your community?” – The rest is Run for Our Sons history!

 

5Ks and fun runs are fast becoming one of PPMD’s…

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Added by Ryan Fischer on March 14, 2013 at 1:30pm — No Comments


Staff
West Coast Connect!

I am so excited that in just 6 weeks, Parent Project Muscular Dystrophy will be hosting our second West Coast Connect Meeting in San Diego, CA, April 26-28, 2013. This meeting will be hosted at the San Diego Marriott Mission Valley.…

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Added by Kimberly Galberaith on March 6, 2013 at 4:00pm — No Comments


Staff
Tree of Hearts

I wish we had a Tree of Hearts. Healthy new hearts would hang on the high branches and devices on the lower branches – low hanging fruit! Established guidelines about who, what, in what circumstances, and where, accompanied by a simple set of instructions for physicians all over the world to…

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Added by Pat Furlong on March 6, 2013 at 10:00am — No Comments


Staff
The MD-CARE Act Reauthorization: Update on Efforts

Updated 3/07/14:  109 total members- New additions in bold below



We continue to make progress on the…

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Added by Ryan Fischer on March 5, 2013 at 3:00pm — No Comments


Staff
Social Isolation: A tale of two boys, and a pop quiz for you

Mary-Lou Weisman

Mary-Lou Weisman, author of Intensive Care and founder of Fund for Pete's Sake. To learn more or to read Mary-Lou's blog, visit …

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Added by PPMD on March 4, 2013 at 10:30am — No Comments

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