March 2013 Blog Posts (23)

a mom and her son

As I sit here

nothing seems near 

except all of a moms fears.

she tries to hide the tears 

but they never seem to stop

never seems to break the cycle.

She cant let him see how bad it hurts

just to know he will never grow up

He will never know what she goes thru

to help him be happy.

She tries not to let him hear her cry

but sometimes he listens when she thinks hes asleep

He lays in bed wandering why mama is…

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Added by danielle on March 5, 2013 at 10:10am — No Comments


Staff
Pipeline Update: Drisapersen, GSK - Recent Presentation

PPMD received an email from Dr. Rohit Batta, Global Medical Affairs and Patient Relations Leader in GSK's Rare Disease Unit following the recent story regarding his presentation on drisapersen at the Duchenne Parent Project Onlus meeting on February…

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Added by PPMD on March 4, 2013 at 11:00am — No Comments


Staff
Social Isolation: A tale of two boys, and a pop quiz for you

Mary-Lou Weisman

Mary-Lou Weisman, author of Intensive Care and founder of Fund for Pete's Sake. To learn more or to read Mary-Lou's blog, visit …

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Added by PPMD on March 4, 2013 at 10:30am — No Comments

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