As I sit here
nothing seems near
except all of a moms fears.
she tries to hide the tears
but they never seem to stop
never seems to break the cycle.
She cant let him see how bad it hurts
just to know he will never grow up
He will never know what she goes thru
to help him be happy.
She tries not to let him hear her cry
but sometimes he listens when she thinks hes asleep
He lays in bed wandering why mama is…Continue
Added by danielle on March 5, 2013 at 10:10am — No Comments
PPMD received an email from Dr. Rohit Batta, Global Medical Affairs and Patient Relations Leader in GSK's Rare Disease Unit following the recent story regarding his presentation on drisapersen at the Duchenne Parent Project Onlus meeting on February…Continue
Added by PPMD on March 4, 2013 at 11:00am — No Comments
Mary-Lou Weisman, author of Intensive Care and founder of Fund for Pete's Sake. To learn more or to read Mary-Lou's blog, visit …
Added by PPMD on March 4, 2013 at 10:30am — No Comments