Featured Blog Posts – February 2016 Archive (4)


Staff
Congress Calls on FDA to Increase Efforts to Treat Duchenne



Thanks to this incredible community urging lawmakers, well over 100 Members of Congress signed and submitted a letter …

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Added by Ryan Fischer on February 18, 2016 at 2:40pm — 1 Comment


Staff
PPMD Announces Gene Therapy Forum

This year’s already action-packed Advocacy Conference, February 21-23 welcomes a special Gene Therapy Forum on Monday, February…

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Added by Abby Bronson on February 10, 2016 at 10:30am — 2 Comments


Staff
Advancing Targeted Therapies for Rare Diseases Act Goes Before HELP Committee

For nearly two years, PPMD has been working with Congressional champions and industry partners to help lead an effort to streamline the regulatory pathways and review processes for targeted therapeutics (which would include such things as ‘follow on exons’) by clarifying the FDA’s existing authority to leverage data previously used in the approval of a targeted product when approving a new therapy. These efforts have yielded a provision in the House of Representatives…

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Added by Annie Kennedy on February 9, 2016 at 3:36pm — 8 Comments


Staff
Growing Our Team

We are not a team because we work together. We are a team because we respect, trust, and care for each other. – Vala Afshar

 

I am the first person to admit that I don’t know much about a lot of different things. But I do know talent when I see it. And I could not be…

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Added by Pat Furlong on February 1, 2016 at 9:43am — No Comments

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