Featured Blog Posts – January 2016 Archive (3)


Staff
ACTION ALERT: Sign-On Extended! Urge House Member - Apply FDASIA Tools to Duchenne

Action Alert

PPMD and a coalition of Duchenne foundations continue to work together on preparing for the Sarepta Ad Comm. As of today, we are still waiting on a new confirmed date. With the postponement of the Ad Comm, the Congressional letter to FDA remains open. Has your House Members signed on…

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Added by Ryan Fischer on January 25, 2016 at 11:30am — No Comments


Staff
ACTION ALERT: Urge House Member - Apply FDASIA Tools to Duchenne

There has never been a moment like this in our Duchenne community. Today the FDA released briefing documents on the application for eteplirsen. It is clear that we continue to face a serious regulatory challenge as a community.…

Action Alert

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Added by Ryan Fischer on January 15, 2016 at 2:45pm — 1 Comment


Staff
We did it! Over $270,000 raised to support early-stage research.

Last month we told you we hoped to raise $200,000 to support new, early-stage research. Throughout the month, we told you about potential therapies like epicatechin. We told you about generous matches from Mary-Lou and Larry Weisman and the Dumm Family/…

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Added by Pat Furlong on January 5, 2016 at 11:00am — No Comments

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