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yohannes getahun bizuneh
- Male
- Addis Ababa
- Ethiopia
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yohannes getahun bizuneh's Page
Profile Information
- About me:
- living with duchnne muscular dystrophy
this year graduate in Addis Ababa university
in the department of public adminstration and development management with bachelor of arts.
- About my family:
- nice family
- Name(s) of child(ren)/individual(s) with Duchenne:
- many
- Age(s) of child(ren)/individual(s) with Duchenne:
- 19 or older
- City:
- Addis Ababa
yohannes getahun bizuneh's Photos
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Comment Wall (3 comments)
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Hi Yohannes
Sorry i was out of touch for that long.How is Addis?How are you now?I hope you are on this PPMD site as much as i.There is so much info and one really gets to know of so much that is happening in the world of DMD research.Hope to read from you.Thanks.
Hi,Yohannes.How is the going?
I have a young son who has dmd.We are struggling the best we can.But doctors here do not much of info for us,just the usual stuff about dmd being uncurable and all that.But ppmd is one real good source of info,and right now,that is one thing that we really need.So yohannes,are you using predsinone or deflazacort or any of the corticosteroids currently? I am still debating with myself whether to get my son on the steroids.
Wainaina,Nairobi.