yohannes getahun bizuneh
  • Male
  • Addis Ababa
  • Ethiopia
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Yohannes getahun bizuneh's Friends

  • wainaina muiruri
  • Tanya Fleming
 

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Profile Information

About me:
living with duchnne muscular dystrophy
this year graduate in Addis Ababa university
in the department of public adminstration and development management with bachelor of arts.
About my family:
nice family
Name(s) of child(ren)/individual(s) with Duchenne:
many
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
Addis Ababa

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Comment Wall (3 comments)

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At 12:48pm on August 12, 2011, wainaina muiruri said…

Hi Yohannes

Sorry i was out of touch for that long.How is Addis?How are you now?I hope you are on this PPMD site as much as i.There is so much info and one really gets to know of so much that is happening in the world of DMD research.Hope to read from you.Thanks.

At 9:30am on March 28, 2011, wainaina muiruri said…

Hi,Yohannes.How is the going?

I have a young son who has dmd.We are struggling the best we can.But doctors here do not much of info for us,just the usual stuff about dmd being uncurable and all that.But ppmd is one real good source of info,and right now,that is one thing that we really need.So yohannes,are you using predsinone or deflazacort or any of the corticosteroids currently? I am still debating with myself whether to get my son on the steroids.

Wainaina,Nairobi.

At 3:30am on March 4, 2010, wainaina muiruri said…
Hi Yohannes.Good to hear from.I am in Nairobi,Kenya.I am yet to meet anyone from our side of woods on this site.Just stumbled on this site as i was looking for info on dmd.Lets stay in touch.Thanks.
 
 
 

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