I am from Vadodara. My son is 8 years old. We are giving him Ayurvedic and Homeopathic medicine. His CPK level is 22000. As I understand improvement from medicine should be seen in muscle strength. Are you seeing any improvement in muscle strength. Next week there is some seminar in Ahmedabad on Muscular Dystrophy. I am planning to attend it. If you are there we can meet. Pl call me at the below no.
My sons cpk level is constantly decreasing ....But it just means that as he his growing and his activities are decreasing his muscle damage and byproduct is decreasing too.It is been seen that cpk tends to be low in non ambulatory kids.Here is USA Drs do not give much importance to CPK level.It is recommended to start steroid ASAP.I was initially hesitant to start but then started it at the age of 7. Please feel free to email for any further opinion or help.