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vilma rodriguez
- tampa,florida
- United States
- Featured Blog (1)
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Special Hospital bed
Started Dec 5, 2009 0 Replies 0 Favorites
vilma rodriguez's Page
Profile Information
- About me:
- Im a parent and grandparent dealing with DMD. My son Ismael 22yrs. old and Gabriel 5 yrs. old. I joined PPMD in an effort to find friends that can really understand what we are going thru.also and can help one another with information,ideas and advice in how to deal with this.
- About my family:
- My family members are my husband Lorenzo Jr.53, my daughter Yenitza 30, my sons Lorenzo III 34, Ismael 22 and granson Gabriel 5. We have a red nose pitbull that is part of our family that is very loving and affectionate specially with Ismael and Gabriel and with them he is very gentle, even thou he loves to play his name is Hercules.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Ismael 22, Gabriel 5
- Age(s) of child(ren)/individual(s) with Duchenne:
- 0-3, 19 or older
- City:
- Tampa, Florida
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advocacy for our sons
Posted on November 12, 2008 at 9:58am 0 Comments 0 Favorites
we need to unite as parents here in florida to change the actual laws concerning med-waiver qualificatons since its very hard for young adults with dmd and their families to get the help they need in the most critical stages of these condition .some of us parents in order to keep our sons home we provide 24/7 caregiving while the other parent have to work all the time to provide for the needs of the family leaving little or no time to help. we need more help from our state since they have… Continue
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Yo tengo un peque Diego, de 5 anios con DMD. Estamos enredados porque estamos en Disney y dejamos su Deflazacort/Calcort en casa!!!! En la busquesa gente que viven en Florida de encontre y me da pena contactarte en estas circunstancias per pvero que son una gran familia.
He mandado notas para ver si alguien me puede prestar o vender Deflazacort para 6 dias. Sera que sabes de alguien,
Te mando un abrazo aunque no te conozca :)
Leslie
phone number: guzman.l@pg.com or (513) 765-9416
I just read your post and am so sorry to hear of such great loss. I too lost my beautiful son to DMD. I would welcome talking to you any time. Sounds like our boys shared a lot in common.
Love and Hugs,
Mary