vilma rodriguez
  • tampa,florida
  • United States
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  • Trinh Nguyen
  • Shea Holbrook
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  • jessica santini
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  • Gisel Rivero
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Profile Information

About me:
Im a parent and grandparent dealing with DMD. My son Ismael 22yrs. old and Gabriel 5 yrs. old. I joined PPMD in an effort to find friends that can really understand what we are going thru.also and can help one another with information,ideas and advice in how to deal with this.
About my family:
My family members are my husband Lorenzo Jr.53, my daughter Yenitza 30, my sons Lorenzo III 34, Ismael 22 and granson Gabriel 5. We have a red nose pitbull that is part of our family that is very loving and affectionate specially with Ismael and Gabriel and with them he is very gentle, even thou he loves to play his name is Hercules.
Name(s) of child(ren)/individual(s) with Duchenne:
Ismael 22, Gabriel 5
Age(s) of child(ren)/individual(s) with Duchenne:
0-3, 19 or older
City:
Tampa, Florida

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Vilma rodriguez's Blog

advocacy for our sons

Posted on November 12, 2008 at 9:58am 0 Comments

we need to unite as parents here in florida to change the actual laws concerning med-waiver qualificatons since its very hard for young adults with dmd and their families to get the help they need in the most critical stages of these condition .some of us parents in order to keep our sons home we provide 24/7 caregiving while the other parent have to work all the time to provide for the needs of the family leaving little or no time to help. we need more help from our state since they have… Continue

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At 1:11am on May 23, 2010, Leslie Guzman said…
Hola Vilma,

Yo tengo un peque Diego, de 5 anios con DMD. Estamos enredados porque estamos en Disney y dejamos su Deflazacort/Calcort en casa!!!! En la busquesa gente que viven en Florida de encontre y me da pena contactarte en estas circunstancias per pvero que son una gran familia.

He mandado notas para ver si alguien me puede prestar o vender Deflazacort para 6 dias. Sera que sabes de alguien,

Te mando un abrazo aunque no te conozca :)

Leslie
phone number: guzman.l@pg.com or (513) 765-9416
At 9:28pm on April 27, 2010, Mary Sahagun said…
Hello Vilma,

I just read your post and am so sorry to hear of such great loss. I too lost my beautiful son to DMD. I would welcome talking to you any time. Sounds like our boys shared a lot in common.

Love and Hugs,
Mary
At 10:39am on February 18, 2010, Atabeira Piedra said…
Hola Vilma, me gusto mucho hablar contigo, gracias por toda la infomacion y tu tiempo. Es increible como esta enfermedad une personas, que en otras situaciones no hubieramos conocido. Hoy estoy un poco triste, Nicolas se cayo anoche despues de mucho tiempo y en su dolor tenia animo para decirme "I'm OK", me rompe el corazon. Bueno seguire en contacto contigo, a ver si puedo comunicarme con tu hija pronto. Un abrazo.
At 2:05pm on February 3, 2010, Atabeira Piedra said…
Vilma, I need to know how I can seek for help from the state for my son Nicolas, he is 3YO. Thanks
At 1:52pm on February 3, 2010, Atabeira Piedra said…
Hola Vilma, disculpa que no te habia contestdado, hace mucho que no tenia tiemo de visitar el site. Por supuesto que me gustaria muchisimo tener contacto con ustedes, yo tengo mas prenguntas que me abrman. Me pueden contactar a mi cel 786-205-7155. Gracias, Que Dios los Bendiaga.
At 7:36pm on November 17, 2008, Gisel Rivero said…
Thank you so much for those beautiful words, I know Dylan would want for us to be a happy family once again. It's just that I sometimes feel that he will think I forgot him, because I could never forget him. Deep down I know he won't think that, he knows how much I love him and always will.
At 1:30pm on August 20, 2008, Jennifer Collier said…
Welcome to PPMD!! Please join the Florida Families group. I look forward to seeing you there!
 
 
 

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