PPMD Community

ven
  • Male
  • Irving, TX
  • United States
Share on Facebook
Share
  • Featured Blog
  • Discussions (5)
  • Events
  • Groups
  • Photos
  • Photo Albums

ven's Discussions

Brenda Wong Leaving CMC

Started this discussion. Last reply by Robin Taylor Mar 30. 3 Replies

Brenda Wong will be leaving Cincinati Medical Center. i got schoked knowing this news. she is great doctor i came across and felt my son is is safe hands.. but i am now very sad and don't know what…Continue

Mutation in Exon 12

Started Sep 11, 2017 0 Replies

Hi All,I just want to see if anyone else has Nonsense mutation in Exon 12. Just want to keep touch with all the people with this mutation to understand better how actually DMD progress in this…Continue

Massage Table for Streches

Started Mar 5, 2017 0 Replies

Hi All,I am right now doing stretches for my son on a couch. I wanted to buy a good massage table for his stretches. i am looking for some suggestions on this. Please share your thoughts. Thanks.--…Continue

 

ven's Page

Latest Activity

Robin Taylor replied to ven's discussion Brenda Wong Leaving CMC
"Shawn - thanks for the update on Dr. Wong. Worcester, Massachusetts is gaining a great doctor --- wish she was coming to Nebraska."
Mar 30
Shawn replied to ven's discussion Brenda Wong Leaving CMC
"We have been taking annual visits to CCH for seven years now, and were so sorry to hear Dr. Wong and her NP, Courtney, are leaving. They are starting a new Duchenne care center in Worcester, Massachusetts. Our family will miss them both (to say the…"
Mar 29
ven favorited Debbie Schneider's discussion COQ10 versus Idebenone?
Feb 21
Robin Taylor replied to ven's discussion Brenda Wong Leaving CMC
"Do you know where Dr Wong is going?"
Feb 15
ven posted a discussion

Brenda Wong Leaving CMC

Brenda Wong will be leaving Cincinati Medical Center. i got schoked knowing this news. she is great doctor i came across and felt my son is is safe hands.. but i am now very sad and don't know what happens to my son next. please suggest any good doctors for DMD like brenda..See More
Feb 11
ven commented on Pat Furlong's blog post First Duchenne Patient Dosed in Microdystrophin Gene Therapy!
"Thanks a lot for all your lead in this DMD world. It is helping our kids and sure coming generations. Micro Dystrophin transfer research is life changing for our boys and girl. we really need these type of drugs/research more. we should not stop…"
Jan 17
ven commented on Abby Bronson's blog post Gene Transfer in the Spotlight
"Great Info on new research happening for DMD. Hope we see cure soon for our kids."
Oct 18, 2017

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
irving
State:
tx

Comment Wall

You need to be a member of PPMD Community to add comments!

Join PPMD Community

  • No comments yet!
 
 
 

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2018   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service