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  • Irving, TX
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ven's Discussions

Mutation in Exon 12

Started Sep 11, 2017 0 Replies

Hi All,I just want to see if anyone else has Nonsense mutation in Exon 12. Just want to keep touch with all the people with this mutation to understand better how actually DMD progress in this…Continue

Massage Table for Streches

Started Mar 5, 2017 0 Replies

Hi All,I am right now doing stretches for my son on a couch. I wanted to buy a good massage table for his stretches. i am looking for some suggestions on this. Please share your thoughts. Thanks.--…Continue


ven's Page

Latest Activity

ven commented on Pat Furlong's blog post First Duchenne Patient Dosed in Microdystrophin Gene Therapy!
"Thanks a lot for all your lead in this DMD world. It is helping our kids and sure coming generations. Micro Dystrophin transfer research is life changing for our boys and girl. we really need these type of drugs/research more. we should not stop…"
Jan 17
ven commented on Abby Bronson's blog post Gene Transfer in the Spotlight
"Great Info on new research happening for DMD. Hope we see cure soon for our kids."
Oct 18, 2017

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:

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