"Shawn - thanks for the update on Dr. Wong. Worcester, Massachusetts is gaining a great doctor --- wish she was coming to Nebraska."
ven's Discussions
Brenda Wong Leaving CMC
Started this discussion. Last reply by Robin Taylor Mar 30. 3 Replies 0 Favorites
Brenda Wong will be leaving Cincinati Medical Center. i got schoked knowing this news. she is great doctor i came across and felt my son is is safe hands.. but i am now very sad and don't know what…Continue
Mutation in Exon 12
Started Sep 11, 2017 0 Replies 0 Favorites
Hi All,I just want to see if anyone else has Nonsense mutation in Exon 12. Just want to keep touch with all the people with this mutation to understand better how actually DMD progress in this…Continue
Massage Table for Streches
Started Mar 5, 2017 0 Replies 0 Favorites
Hi All,I am right now doing stretches for my son on a couch. I wanted to buy a good massage table for his stretches. i am looking for some suggestions on this. Please share your thoughts. Thanks.--…Continue
ven's Page
Latest Activity
Shawn replied to ven's discussion Brenda Wong Leaving CMC"We have been taking annual visits to CCH for seven years now, and were so sorry to hear Dr. Wong and her NP, Courtney, are leaving. They are starting a new Duchenne care center in Worcester, Massachusetts. Our family will miss them both (to say the…"
Robin Taylor replied to ven's discussion Brenda Wong Leaving CMC"Do you know where Dr Wong is going?"
ven posted a discussionBrenda Wong Leaving CMC
Brenda Wong will be leaving Cincinati Medical Center. i got schoked knowing this news. she is great doctor i came across and felt my son is is safe hands.. but i am now very sad and don't know what happens to my son next. please suggest any good doctors for DMD like brenda..See More
ven commented on Pat Furlong's blog post First Duchenne Patient Dosed in Microdystrophin Gene Therapy!"Thanks a lot for all your lead in this DMD world. It is helping our kids and sure coming generations. Micro Dystrophin transfer research is life changing for our boys and girl. we really need these type of drugs/research more. we should not stop…"
ven commented on Abby Bronson's blog post Gene Transfer in the Spotlight"Great Info on new research happening for DMD. Hope we see cure soon for our kids."
Profile Information
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6
- City:
- irving
- State:
- tx
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