ven
  • Male
  • Irving, TX
  • United States
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ven's Discussions

Brenda Wong Leaving CMC

Started this discussion. Last reply by Robin Taylor Mar 30, 2018. 3 Replies

Brenda Wong will be leaving Cincinati Medical Center. i got schoked knowing this news. she is great doctor i came across and felt my son is is safe hands.. but i am now very sad and don't know what…Continue

Mutation in Exon 12

Started Sep 11, 2017 0 Replies

Hi All,I just want to see if anyone else has Nonsense mutation in Exon 12. Just want to keep touch with all the people with this mutation to understand better how actually DMD progress in this…Continue

Massage Table for Streches

Started Mar 5, 2017 0 Replies

Hi All,I am right now doing stretches for my son on a couch. I wanted to buy a good massage table for his stretches. i am looking for some suggestions on this. Please share your thoughts. Thanks.--…Continue

 

ven's Page

Latest Activity

ven commented on Abby Bronson's blog post Gene Transfer in the Spotlight
"Great Info on new research happening for DMD. Hope we see cure soon for our kids."
Oct 18, 2017

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
irving
State:
tx

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