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tom evans
  • Male
  • Montgomery, AL
  • United States
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  • ferre
  • Joanne Wechlser

tom evans's Discussions

It's not their problem

Started this discussion. Last reply by becca r Nov 12, 2010. 7 Replies

 

tom evans's Page

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tom evans posted a discussion

It's not their problem

I have 3 brothers who are all successful and when Benjamin was 1st diagnosed with DMD I recall them telling me "Don't worry we've got plenty of resources just figure out what needs to be done and we'll help you."The first 2 years they did just that.They'd take him to physical therapy,to the movies,to restaurants,picked him up from MDA camp,went with me on doctors visits.Then Benjamin became wheelchair bound and things changed rapidly.None of them come to see him anymore except for his birthday…See More
Jun 25, 2010
tom evans posted a discussion

central site for local disable needs

I am trying to get a website set up for the disabled in our area that would allow anyone to enter their condition into the site and it would link them to the agencies,charities,church groups and different functions available to them.I don't know about y'all,but i spend countless hours trying to get information about local services that can help me meet Benjamin's needs,only to find that word of mouth from other parents has been my best source.It seems to me that if we had a central site in our…See More
Jun 22, 2010
tom evans joined ferre's group
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ataluren trial following up

discussion about what we have to do
Apr 19, 2010

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Benjamin
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City and State:
montgomery, al
Country:
usa

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At 11:30am on March 9, 2010,
Staff
Pat Furlong
said…
please call me. 513-424-0696 or mobile 917-578-1841
At 5:49am on December 4, 2009, Joanne Wechlser said…
Sorry it took so long for me to respond. I don't get to this very often. How are you guys doing? We're back in Philly in January.
 
 
 

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