thomas m golf
  • Male
  • Oak Lawn, IL
  • United States
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  • Melanie Sunny
  • Christine McSherry
  • Polly Sundeen
 

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Profile Information

About me:
well my son we where told he has dmd
About my family:
we have two kids my little guy anthony he has dmd and my otherson is 12
Name(s) of child(ren)/individual(s) with Duchenne:
anthony
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
oaklawn il

Comment Wall (3 comments)

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At 11:50am on November 25, 2010, Polly Sundeen said…
Hi Thomas. I'm sorry I didn't get your message before now. My son also has a deletion of 46-47. He is 11 now and just stopped walking this past summer. We have been taking him to see Dr Wong at Cincinnati Children's Hospital since 2005. How old was your son when he was diagnosed?
At 10:53pm on January 29, 2010, Wyatt's Mommy, Melissa said…
Welcome, I've found a lot of comfort on this site. I've met some incredible people. I hope you can connect with some people to help you through this. If your state has a group, join it. It helped us that we could connect with other families locally. Best of Luck and God Bless.
At 12:42am on January 29, 2010, christine good said…
Welcome, Glad you found us. Circumstances bad, but this is the right place to be.
 
 
 

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