sulthana shaik's Discussions
Started this discussion. Last reply by Kirubha Balakumar Sep 25.
HiWe are planning to participate in exon 45 skipping trail, for our 12 year old son.Is any one already enrolled in the exon skipping trail for either 51/45/53, Can you please share your experience.…Continue
Tags: skipping, exon
Started Jul 16
Hi , Our son Was diagnosed with duchenne muscular dystrophy around 5 years of age.Now he is 12 years old. We are struggling with our insurance get him a power wheel chair.In the mean while we are…Continue
Started this discussion. Last reply by Andrea Cleary Feb 8, 2016.
HiMy son is 10 years old with Duchenne . He has learning disability as well. He has a very short statute.I am in a very uneasy situation when strangers ask about his grade.When I say he is in 5th…Continue