Exon 45 skipping/ exon 51 skipping, Help to make a hard decision !!.PLEASE HELP.

Started this discussion. Last reply by Kirubha Balakumar Sep 25, 2017. 8 Replies 1 Favorite

HiWe are planning to participate in exon 45 skipping trail, for our 12 year old son.Is any one already enrolled in the exon skipping  trail for either 51/45/53, Can you please share your experience.…Continue

Tags: skipping, exon

Need special needs stroller

Started Jul 16, 2017 0 Replies 0 Favorites

Hi , Our son Was diagnosed with duchenne muscular dystrophy around 5 years of age.Now he is 12 years old. We are struggling with our insurance get him a power wheel chair.In the mean while we are…Continue

Answering questions from strangers

Started this discussion. Last reply by Andrea Cleary Feb 8, 2016. 2 Replies 0 Favorites

HiMy son is 10 years old with Duchenne . He has learning disability as well. He has a very short statute.I am in a very uneasy situation when strangers ask about his grade.When I say he is in 5th…Continue