Steve Beaulieu
  • Male
  • Whitehorse, Yukon
  • Canada
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Steve Beaulieu's Discussions

Mobility options

Started this discussion. Last reply by Nick Grande Oct 12, 2010. 26 Replies


Beaulieu's Whitehorse Yukon Canada

Profile Information

About me:
Live in Whitehorse Yukon Canada. Work as a Mining Inspector for Yukon Government. loves to travel with the family and likes to telemark ski.
About my family:
Wife Michelle is a teacher in Whitehorse and enjoys running and skate skiing. 20 year old boy Dawson (unaffected) loves skiing and the outdoors. Two boys with DMD- Ross 18 loves travel, reading and movies, starwars and the pool. and Finn 15, loves, lego the pool and animals-especially his cat "Ted" (female).
Name(s) of child(ren)/individual(s) with Duchenne:
Ross and Finn Beaulieu
Age(s) of child(ren)/individual(s) with Duchenne:
Whitehorse, Yukon Canada (far north west Canada)

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Steve Beaulieu's Blog

PPMD "RUN for our SONS" Yukon Trail Marathon

Posted on January 6, 2012 at 5:55pm 1 Comment

PPMD Run for our Sons Whitehorse Trail Marathon and half marathon Aug. 2012!!  Please sign up and run the world famous Yukon /Klondike trail Marathon in 2012. Hike the famous Chilcoot trail from Skagway Alaska over the White Pass into Historic Log Cabin BC Canada!!

Fundraising efforts.

Posted on December 18, 2008 at 2:41pm 10 Comments

PPMD community members
I have a great fundraising idea that would require the use of pictures of our boys. Would families be interested in submitting a few photos of their hero/heros for a one time use? The pics would be deleted afterwords and all fundraising efforts would go directly to a chosen PPMD research inititive. Can you please respond through the PPMD community site if interested.


Steve Beaulieu

Comment Wall (26 comments)

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At 9:49am on June 23, 2011, Richard Kelly Poole said…
gr8 to here from you -hope evryone is well-it seems i only go on this site a couple times a yr;but will try tocheck in more-we are up in the air re Baltimore but may book it toay-Colin called me on my cell phone yesterday and said he will be in NY  city before the conf. so i/we will try tohave that beer or two etc.and maybe another one in Baltimore,have fun in Seattle,we hope tosee you guys eventually  either on vacation or confrences etc. Be well Rich
At 9:54am on June 17, 2011, Colin McKenzie said…

I ahve just seen the post on Richards wall, sending you both a message hoping you get to Baltimore. I read something about far??? How does 16 hours of flying non stopp dsound to you, so I am sure we can agree you should nip over to the USA and join the conference again.



At 9:05am on June 10, 2011, Richard Kelly Poole said…
better late than never,obviously no Denver last yr, just went on this site 1st time in a long time-am contemplating Baltimore right now'how about you?hope all is well-Rich Poole
At 4:15pm on February 9, 2011, Lance Hester said…

Hi Steve.  

Thanks for the note.  A group of our wonderful supporters had a r&r team last year.  I'm unsure if they are part of it again this year.  I'll check with them.  Regardless, i will also check our family calendar to see if we'll be around that weekend.  Due to a torn achilles that is still healing (i'm up to 1 mile, though), I'm not able to physically participate.  We'd love to othewise support the effort.  Off to DC saturday for OneVoice and lobbying!  Let's lick this disease! (BTW, my profile might be a little unclear.  i have two boys - one of which has dmd.)


At 11:16am on May 5, 2010, Colin McKenzie said…
Are you going to Dnver conference this year, Suzanne and I are, just finalised all the bookings.
At 2:34pm on December 27, 2009, Richard Kelly Poole said…
hi steve, i don't know because its' the last week of school for Spencer, that kept Nicole from going w/me to Atlanta last june,one of us may go,we really havn't talked about it yet. hope all is well
At 2:43pm on September 9, 2009, Marian Lamberson said…
Hi there, just wanted to drop a note and say hello. There are so few of us that have two boys with DMD, especially in Canada, that i fear no one can totally relate. How did school begin? Here everything started on a positive note. Did you attend the PPMD conference? My husband and i are attending next year. Maybe i will put a posting in the Canada group, it would be nice if we could all meet each other.
If i can ask you how your wife is doing? I find as being the carrier female, there are alot of emotions and responsibilities there. Just curious to know how she copes. Anyway, now i am just blabbing, guess just like to keep in touch with those who truly understand. We are heading to Florida in the winter, planning on taking the boys to a Dr who specializes in DMD, suppost to be very informative. Take care!!! :)
At 1:57pm on April 1, 2009, DASUKI I ARABI said…
hi steve.hope you are ok.
please let me know how you are doing now.
At 12:13pm on April 1, 2009, Missy Shutts said…
I don't believe we have met, but I look forward to meeting you and your family soon! To answer your question, CoQ10 is recommended by some physicians and suggested to provide benefit to the heart. Maintaining consistent levels in the blood is sometimes difficult and depends on the brand to some extent. Dr. Brenda Wong recommends 2 specific brands, though I am not sure of those names. Idebenone is a synthetic version of CoQ10. Because it is a synthetic version, it is more stable in the bloodstream. Santhera pharmaceuticals is involved in clinical trials with Idebenone (dmd – Belgium) and is working to get it approved in the US. I believe it is currently approved for use in Canada. I would suggest you discuss the various CoQ10 options with your sons' physician to determine the best treatment for them. Please let me know if there is anything else we can do to help!
Have a great day!
At 12:00am on January 27, 2009, Margaret Jean said…
Hi Steve and Michelle: I love the new pictures that you have added to your album. It's great to be on the site and enjoy all your family pictures. Sure hope Ross is managing better with his broken leg and that Finn is feeling better, also. Miss you all so much and looking forward to coming for Ross' graduation. Love and Hugs,
Grandma and Grandpa.

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