hi i am sharon i am 39 married to kevin,got four children one with dmd who just passed away on 20th feb 2009 three weeks before his 18th birthday which was on 16th march 2009. It was a pleasure being matthews mother.
About my family:
i got three other children nathan 12, joshua 10(11 on 19th april),holly 6
and they are keeping me going .
Name(s) of child(ren)/individual(s) with Duchenne:
hi everyone hope you are all doing ok well i am just taking a day at a time but i miss matthew so much did not know that it would hurt so much its just been over 8 weeks now and its not getting any eaiser dont now what to do with myself but know i got to stay strong for the rest of my children so i hope that you are doing ok love sharon
Hi Sharon - I smiled when I just read about you finding Matthew's socks. I too have had little 'signs' of Jeffrey since his passing. I hope you and I have many moments like that. As I sit here tonight catching up on my emails I hear the wind chimes outside. They sound beautiful. A few moments ago they were singing so beautifully I stopped to listen. I like to think my Jeffrey was singing to me. We have butterflies all over the house. And I've started 4 butterfly gardens. Jeffrey used to love sitting outside looking at nature in all its glory. He used to follow the flight of a butterfly so intently almost like he was one with the butterfly. Any time I see a butterfly or a morning dove I like to think that's Jeffrey saying hello. Today I went to his grave to pay him a visit and opposite Jeffrey's grave we saw a beautiful dove. Just looking at us. It was awesome! I read earlier how you still visit Matthew's grave and have not missed a day since his passing. Sharon it's been 1 1/2 years for me and I've not missed a day either. Come rain or shine my day is not complete unless I visit my angel. Did your son pass away on March 16th or was it his birthday? My birthday is on March 16th. I went 42. My heart goes out to you and your family. This will be a difficult year for you. The firsts always are. But with the love of your family and the support that you will get here - you will make it and we will be beside you to hold your hand every step of the way. You are never alone in your grief. There are many of us united by the pain of loosing our sons.
I have a 5 year old daughter named Gabriella Nicole. Gabriella for the angel Gabriel and Nicole for St. Nicholas (we are catholic and St. Nicholas is the said of giving) She has been our blessing and our saviour. She is full of life and love. She misses her brother every day and not a day goes by that she does not think of him. My fear is that she is so young (she was 4 when Jeff passed away) I hope she will remember Jeffrey always and never forget what joy love and pleasure Jeffrey always brought us. Loosing your son will never get easier - the pain will never go away. We have to learn to cope differently and to live with our son's in our hearts.
Like you (and Emma, below) I am also from the UK. I am so very very sorry to hear about Matthew's death. I can't even begin to imagine what you must be going through and what you are feeling, or how you are dealing with it. I know many of us can't understand but we are still here to listen if you need us, and we can provide good shoulders to cry on. We too are in this fight that you have been in for almost 18 years, so our hearts truly go out to you.
I am so sorry to hear of Matthew's passing. I second Mary's sentiments. We know they are in a better place - but our hearts break. May Matthew rest in peace and I pray that he's in heaven enjoying himself with all of our boys who have gone before him. I somehow like to picture my son waiting at the gates of heaven to welcome your son.........
hugs & my deepest condolences
Ana & family
I'm so sorry to hear about the loss of your son Matthew. I can understand what you may be feeling, We lost our son Kenny two years ago today. It has been tough but, knowing he's in a better place gives us some comfort. If you should need someone to talk to or if you just want to share Matthew with me, I would love to hear all about his life. I pray that God will grant you peace and comfort.