Hi Sharon,

Zac has received 2 injections since July. He is getting his 3rd this Thursday. It's hard to see a huge difference, but he could be on the placebo, or it could be maintaining him.

Hi Sharon: Thanks for your note on my page. I would love to talk with you anytime, either here online or at vlail@shaw.ca. Or, give me your contact phone numbers and I can call you. Sorry for the delay in accepting your friend request--I tried a few times but the site wasn't responding. Your pictures are great. Joey is a handsome little guy. How old is he?

Looking forward to talking to you soon.

Vee

Hi Sharon,

Sorry to have to meet you under these conditions.
I am in Vancouver...where is Enderby? A few other questions...Whats your little guy like??(if he's anything like mine...he's a smart little character, and funny too!)
How long have you known about Joeys DMD, what sort of care is he getting right now, by whom, and do you know his exact form of gene mutation?
Brad

Welcome Sharon to PPMD Community. Kari