Run For Our Sons 2017 In Memory of Joshua ArndtOn Saturday August 19, 2017 from 9 AM - 2 PM, family members and friends will be participating in a 5K run/walk at Delaware Park Ring Road Buffalo, NY.Registration starts at 8:30 AM or you can register online.For more information about the 5K, visit the race website. See More
PPMD will host our annual Duchenne Drug Development Roundtable (DDDR) during the 23rd Annual Connect Conference later today. Established more than seven years ago, PPMD's DDDR is a group of committed innovators representing industry and relevant stakeholders that has the goal of accelerating the development of meaningful treatments for Duchenne through open discussion and working…See More
Today, PPMD is convening medical experts from around the world for a workshop exploring inflammation and immunity in Duchenne on the eve of our 23rd Annual Connect Conference.In January, PPMD organized a Critical Path Innovation Meeting with…See More
I'm sorry if i upset anyone with my message of any families with young boys, we experienced the most wonderful, fulfilling,caring, happy, joyous i could go on and on..of our lives with our darling boy he brought us so much pleasure we miss him so much but we will go on and carry on raising awareness and raising funds for the hospice (derian house) they were a fantastic support and still are enjoy everyday and live for every moment xxx
Thank you for replying to my message, its been the hardest few months of our lives, matthew was our world and we miss him like i cant explain, he was loved so much by all his family. he was such a well and happy boy, his passing came as such a shock it was so sudden and unexpected, we had had such a perfect day with him i still cant believe it happened and how we are coping without him with us. you read literature regarding the boys condition and me and my husband believed we were so lucky with matthew as he had always been in such good health, we were so lucky. when the boys reach a certain age things change for them and we didnt see it coming (something i will never forgive myself for) the care matthew received once in adult services wasnt the same or as through. thank you once again for replying its good to type away my thoughts xxx love lynn
Thank you so much! We are hoping to connect with others that are successfully finding ways to improve the quality of life for their sons.. and working to find a cure! I would be blessed by the information you mentioned. I'll take a look at that link. Thank you again for the welcome!