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Paint for Peyton to end Duchenne
June 8, 2012 from 6:30pm to 7:30pm – Spirited Art
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Parent Project Muscular Dystrophy (PPMD)
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- About me:
- Parent Project Muscular Dystrophy’s mission is to end Duchenne. We accelerate research, raise our voices in Washington, demand optimal care for all young men, and educate the global community.
email: Community@ParentProjectMD.org
phone: 800-714-5437
- City and State:
- Hackensack, NJ
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PPMD endorses Senate version of Prescription Drug User Fee Act (PDUFA) after patient voice strengthened
Posted on May 24, 2012 at 3:00pm 1 Comment 0 Favorites
As the U.S. Senate continues debate on legislation that seeks to accelerate delivery of safe and effective therapies to patients and to increase the patient voice as part of the therapy review process, PPMD is pleased to offer our enthusiastic endorsement of the legislation.
Over the past several months, PPMD has fought to include several key provisions included in the Senate version of the Food and Drug Administration Safety and Innovation Act, commonly referred to as the…
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PPMD endorses Senate version of Prescription Drug User Fee Act (PDUFA) after patient voice strengthened
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Events
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Paint for Peyton to end Duchenne
June 8, 2012 from 6:30pm to 7:30pm – Spirited Art
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© 2012 Created by PPMD.
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I'm sorry if i upset anyone with my message of any families with young boys, we experienced the most wonderful, fulfilling,caring, happy, joyous i could go on and on..of our lives with our darling boy he brought us so much pleasure we miss him so much but we will go on and carry on raising awareness and raising funds for the hospice (derian house) they were a fantastic support and still are enjoy everyday and live for every moment xxx
Thank you for replying to my message, its been the hardest few months of our lives, matthew was our world and we miss him like i cant explain, he was loved so much by all his family. he was such a well and happy boy, his passing came as such a shock it was so sudden and unexpected, we had had such a perfect day with him i still cant believe it happened and how we are coping without him with us. you read literature regarding the boys condition and me and my husband believed we were so lucky with matthew as he had always been in such good health, we were so lucky. when the boys reach a certain age things change for them and we didnt see it coming (something i will never forgive myself for) the care matthew received once in adult services wasnt the same or as through. thank you once again for replying its good to type away my thoughts xxx love lynn
thank you verry much!
thank u and i was wondering how we can get stuff going in North Dakota
Thank you!
Thank you! This site and your work is such a blessing to our family!
Lorrie
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