Im 33 years old an mother of 4 children living in the great yarmouth norfolk uk.
About my family:
I have two teen girls a 2yr old boy an Lee who is 9 yrs old an has DMD he was diagnosed in 2009 this is a huge shock to me as i had never heard of Muscular Dysrophy. Lee is still walking but has started to fall alot more in the past year. Im looking to travel for treatment for him as the uk has none as yet . I have been reading some promesing news on stem cell treatment, can anyone tell me if this is correct please.
Name(s) of child(ren)/individual(s) with Duchenne:
Welcome Maria... Please do not hesitate to contact PPMD if you or your family need anything! You should contact PPMD's President & CEO Pat Furlong regarding your questions about treatments in the UK and stem cells. As Pat travels frequently, the best way to connect with her is via email at Pat@ParentProjectMD.org