michael stone
  • Male
  • Boynton Beach, FL
  • United States
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Name(s) of child(ren)/individual(s) with Duchenne:
yehuda goldstein
Age(s) of child(ren)/individual(s) with Duchenne:
boynton beach

Michael stone's Blog

reflecting back to the advocacy conference/PAAC initial meeting

Posted on April 27, 2015 at 3:13pm 1 Comment

  Attending the initial meeting of the PAAC in DC this last February was quite an amazing experience. It was our first live get together. I was so very impressed by the knowledge and enthusiasm of the group. We started out having 2 days of meetings and presentations. At he end of those two rather intense days we came together with a consensus of the things we as a committee were going to be tackling.

  One of the things that the group was asked to do was to come up with someone from…


Michael E. Stone -serving with fellow distinguished members on the PAAC

Posted on March 12, 2015 at 10:30am 0 Comments

I would like to introduce my self with a brief history. I'm 64 and living with BMD. How I came to find out the correct diagnosis of Becker muscular dystrophy is quite interesting and hopefully informative. I hope that my story could help those who might be in a similar situation. There will be a tie in to the work that the newbie PAAC has begun working on.

In 2000 at age 50, I thought that it was a proper time to start an annual physical routine. I visited my internist and all…


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