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mehrzad haidari
  • Male
  • shiraz,persia
  • Iran
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Mehrzad haidari's Friends

  • Nadja
  • Dilfuza Mendibaeva
  • mehmet tarık dündar
  • Debbie Schneider
  • Ruth Le Gal
  • Geraldine Coolidge
  • Joshua's mom

mehrzad haidari's Groups

mehrzad haidari's Discussions

Bone Drug Protects Stem Cells from Aging

Started this discussion. Last reply by mehrzad haidari Dec 18, 2015. 1 Reply

Stem cells can be protected from the effects of ageing by a drug currently used to treat patients with osteoporosis, a breakthrough study has found.Scientists from the University of Sheffield…Continue

Scholar Rock Touts Muscle-Building Drug's Potential

Started this discussion. Last reply by mehrzad haidari Sep 29, 2015. 1 Reply

Scholar Rock, a small startup located in Cambridge, Massachusetts, revealed new data regarding lead drug candidate SRK-015 last week at the European Molecular Biology Organization’s annual…Continue

History made with first small LVAD implant for young muscular dystrophy patient

Started Mar 31, 2014 0 Replies

“Today, we’re going to make history,” said 18-year-old Eric Ramos on the day doctors operated on his ailing heart. Eric, who has Duchenne muscular dystrophy, is one of only three patients in the…Continue

Duchenne and Epilepsy

Started Mar 5, 2014 0 Replies

Hi Everybodymy son, 7.5 years old, DMD, diagnosed with epilepsy last year after two seizure in 4 months period.he was under treatment with lamotrigine for 10 months but it is about 2 months that he…Continue

 

mehrzad haidari's Page

Latest Activity

Cecilia grandson left a comment for mehrzad haidari
"Employment opportunity in Pan Pacific Hotel, The manager of Pan Pacific Hotel Canada, wants suitable personal in which our hotel needs men and women who can work and live in Pan Pacific hotels here in Canada . Our hotel will be responsible for the…"
Mar 18, 2016
mehrzad haidari replied to mehrzad haidari's discussion Bone Drug Protects Stem Cells from Aging
"hi everybody until now, that i read and posted this new research, i had not any knowledge about drugs used to build bones.. Please let me know if anybody here uses these type of drugs...Thanks"
Dec 18, 2015
mehrzad haidari posted a discussion

Bone Drug Protects Stem Cells from Aging

Stem cells can be protected from the effects of ageing by a drug currently used to treat patients with osteoporosis, a breakthrough study has found.Scientists from the University of Sheffield discovered the drug zoledronate is able to extend the lifespan of mesenchymal stem cells by reducing DNA damage.DNA damage is one of the most important mechanisms of ageing where stem cells lose their ability to maintain and repair the tissues in which they live and keep it working correctly.The pioneering…See More
Dec 18, 2015
David replied to mehrzad haidari's discussion Halo HT-100 Clinical Trials is enrolling
"I have no personal experience to share. We have not enrolled yet. We had hoped for another trial that has not started. We don't know anybody whose participated."
Dec 1, 2015
Monica Anca Zavoianu replied to mehrzad haidari's discussion Halo HT-100 Clinical Trials is enrolling
"hank you, David. I see that your son has also been accepted and you are really lucky and I really hope this would work for you and your son. Unfortunatelly, I don't live in the US, but they also told me that there will be a trial in the Europe.…"
Dec 1, 2015
Nadja favorited mehrzad haidari's discussion Halo HT-100 Clinical Trials is enrolling
Dec 1, 2015
David replied to mehrzad haidari's discussion Halo HT-100 Clinical Trials is enrolling
"Consider that most treatments seek mainly to stabilize muscle function at the level it was measured when your son starts, it's much less likely to actually rebuild lost function. This, to me, suggests the earlier your son is enrolled (rather…"
Dec 1, 2015
David replied to mehrzad haidari's discussion Halo HT-100 Clinical Trials is enrolling
"I'm trying to get my son onboard too, but I don't have your challenge because there is a trial site in my city. Very tough choice"
Dec 1, 2015
Monica Anca Zavoianu replied to mehrzad haidari's discussion Halo HT-100 Clinical Trials is enrolling
"Hi, guys, I just received an email from Akashi Therapeutics telling me that my son will be accepted in this trial. I really need your advise - because this is a long an unknown road.. How many of you participated to the previous trial ? We…"
Nov 30, 2015
Monica Anca Zavoianu replied to mehrzad haidari's discussion Halo HT-100 Clinical Trials is enrolling
"Thank you, Moein for this information, this is really encouraging Monica"
Nov 12, 2015
Moein replied to mehrzad haidari's discussion Halo HT-100 Clinical Trials is enrolling
"HT-100 - Akashi's Phase 1/2 Clinical Program in Duchenne   Frequently Asked Questions (FAQs) about this research:   What stage is this research? This clinical trial program is actively recruiting participants.   What is the…"
Nov 11, 2015
Monica Anca Zavoianu replied to mehrzad haidari's discussion Halo HT-100 Clinical Trials is enrolling
"Hi, I have an 8 years old boy with DMD. I was wondering if  someone tell me about the HT-100 phase 2 ? I know there are still recruiting and I was wondering if someone went to phase 1 clinical trial ? Are there any benefits, I mean if there are…"
Nov 11, 2015
David favorited mehrzad haidari's discussion Scholar Rock Touts Muscle-Building Drug's Potential
Sep 29, 2015
mehrzad haidari replied to mehrzad haidari's discussion Scholar Rock Touts Muscle-Building Drug's Potential
"Scholar Rock, a small startup located in Cambridge, Massachusetts, revealed new data regarding lead drug candidate SRK-015 last week at the European Molecular Biology Organization’s annual meeting.  The compound is a “niche…"
Sep 29, 2015
mehrzad haidari posted a discussion

Scholar Rock Touts Muscle-Building Drug's Potential

Scholar Rock, a small startup located in Cambridge, Massachusetts, revealed new data regarding lead drug candidate SRK-015 last week at the European Molecular Biology Organization’s annual meeting. The compound is a “niche modulator inhibiting activation of the latent myostatin precursor,” explains the company’s announcement.As NPR reports, myostatin is a …See More
Sep 29, 2015
mehrzad haidari favorited Pat Furlong's blog post At Long Last, A Victory!
Apr 22, 2014

Profile Information

About me:
mehrzad , 38 yrs old,
my son, Behrad,5.5 years old, diagnosed 4 months ago.Exons Deletion : 46-47.
Name(s) of child(ren)/individual(s) with Duchenne:
Behrad
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
shiraz-persia

Behrad's Daily Medications

Deflazacort 2.5 tablet

idebenone currently 2 capsule +150mg daily

Green Tea extract : 1 tablet 450mg =196mg polyphenols

MultiVitamin +omega 3

calcium+vitamin d

cod liver oil

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At 11:34am on March 18, 2016, Cecilia grandson said…

Employment opportunity in Pan Pacific Hotel, The manager of Pan Pacific Hotel Canada, wants suitable personal in which our hotel needs men and women who can work and live in Pan Pacific hotels here in Canada . Our hotel will be responsible for the payment for his/her air ticket feeding and accommodations only, so if you are interest you can contact us directory at this below e-mail address link...with your C.V. EMAIL:employmentpanpacific@torontomail.com we look forward for your prompt reply. Thanks. From the Hotel manager. Mrs Cecilia Grandson.

At 3:20am on October 9, 2012, Dilfuza Mendibaeva said…

Thank you very much for you letter. I really appreciate it. Now  he is 3 years old. As some of the doctors recommended us to start steroids in 5. Now we have only physiotherapy and yesterday i bought same supplements which  you posted on your wall. I hope it will give some help. Now we are rushing with his vaccinations. How is Behrad doing? I hope everything is well.I would like to ask you. How much it cost for the consultation in Iran?In your case .How much do you spend for one visit. Sorry for asking such a silly questions. But i think here we are rolling with very expensive cost.Are you going to physiotherapy often or doing it at home? I will be very glad to hear from you.

Regards.Dilfuza

At 7:47am on October 8, 2012, Dilfuza Mendibaeva said…

Hi Mehrzad. hope you are doing good. My name is DIlfuza. Currently live in Dubai. Recently my son diagnosed with DMD. We are still news in this field. I have gone through your profile. I need your advise on few things. Here we tried to consult with the doctors regarding the treatment, unfortunatly non of them could tell us what kind of medications or supliment we have to give  to  my son. He is 3 years old. We have contacted one hospital in germany they have told us very expensive cost for the consultation. for two hours consultation thay said EUR 7.500 and 1 week treatment is EUR 15.000. We really confused is it real cost of  the treatment? i really appretiate if you give me some advise . Which doctors are taking your son? How much do you spend fr the doctors. I know you are in Iran . May be we can visit you. Thank you so much for yout ime.Take care.

At 4:22pm on March 9, 2012, Debbie Schneider said…

Hello, thank you for your message.  I am only a new Reiki Master of some 6 months and at this stage just give Reiki to my family, who I would also like to attune to Reiki energy some time soon.  The best time for me to give Reiki to Dylan is at bedtime and do it while I am doing his stretches and after especially on his feet, ankles, hips and back at this stage, and send him the absent healing energy daily also.  I use Reiki too for myself to keep myself strong mentally and find the daily prayers help me immensely.  I still need to get back into the habit of meditating daily which, since Dylan's diagnosis last July, I have struggled with, seems sometimes the things we need to do for ourselves the most are the hardest to do.  I loved your photos, I must post some up too.  What a beautiful boy you have and what a lovely family  When did you learn of Duchenne in your son? Look forward to writing more to you guys in the future, Take care. Regards Debbie

 
 
 

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