I am a stay at home mom. Like any other mom, I love to be around my kids all the time. Though making them have a full meal is quite a challenge but it's worth it. I enjoy reading books, cooking, catching a movie with my friends, visiting historical places. I am firm believer in God and am very optimistic about the future.,
About my family:
I have 2 boys 10 and 9. My 10 year old was diagnosed with Duchenne when he years ago and since then a moment hasn't passed when I don't think and pray for his health and long life. Both my boys love to keep me on toes. My husband is a scientist and keeps himself updated with the latest research in the field. I admire his positive attitude and strength in dealing with this situation. We all love to spend time with each other, play, go out and watch movies.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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Thanks for the friends request. My son was diagnosed with DMD a year and a half ago on his second birthday. It has definitely been a challenging journey with a lot of questions. Luckily with the help of this site, facebook, friends and family the journey has started off with lots of advise, support and comfort.
We have 3 kids now 14,19 &21. When Jacob was dx and our oldest started to ask. We told them all Jacob had DMD and his muscles were weaker and that everyone in the family had a problem which they all knew as, Ben the oldest had weak eyes...he had glasses...Kelsey at that time 3 had asthma and she needed a neb...dad had trouble hearing and mom also has athma. Ben did not many questions but Kelsey did with time she asked if Jacob was going to die and I told her we all would die, maybe Jacob would go sooner but none of us know and I had great hope with the research. I was very active on capitol hill and we had senators and teir aids calling and so the kids felt apart of that. Good Luck Cheri