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maxine Strydom
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- durnan
- South Africa
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maxine Strydom's Groups
maxine Strydom's Discussions
can anyone help with depression ?
Started this discussion. Last reply by Ian Anthony Griffiths Oct 30, 2010. 4 Replies 0 Favorites
IDEBENONE
Started this discussion. Last reply by Moein Feb 5. 193 Replies 0 Favorites
Trial started in the UK
Started this discussion. Last reply by Ofelia Marin Oct 21, 2008. 5 Replies 0 Favorites
maxine Strydom's Page
Latest Activity
Moein replied to maxine Strydom's discussion IDEBENONE"Hi Galia,
I meant that it might take 10 years for a drug to be in the market not 10 years to start a trial.Anyway Galia,I wish I was wrong,but ACE 031 has been on hold for more than 6 months and nothing is underway!!!
"
Galia Ben Ishay replied to maxine Strydom's discussion IDEBENONE"Hi Moein,
Why do you feel so disheartened? I may be wrong but I've just read an article on biglycan for instance (published in this website) saying that it everything goes well, the clinical phase will start late 2012 or at the beginning of…"
Moein replied to maxine Strydom's discussion IDEBENONE"It seems that the development of any drug for DMD will take at least 10 years,so I am afraid that the DMD boys who may benefit from any treatment (if any) ARE NOT BORN YET!!!!!!!!!!!!!!!!!!!!
Idebenone is still in a clinical trial!notice that…"
"Hi Govind, My son also takes alot of vitamins and minerals and his medications. at first it seemed like a lot but like Ruth said, you kind of get in a routine. recently after my son was taking idebenone for 6 months and his…"
"Hi Govind, We give our son creatine and hemp protein (it contains a natural balance of all the amino acids). My son takes quite a few supplements as well as vitamins and minerals but once you get into a routine it doesn't seem…"
Joshua's mom replied to maxine Strydom's discussion IDEBENONE"HI Govind,
The biggest benefit between Deflazacort and Prednisone, is the swelling, weight gain & scoliosis extremes. Below is a link for you. As for too many supplements, you are more than welcome to look at my page. It may…"
Govind replied to maxine Strydom's discussion IDEBENONE"Thanks a lot for the links, Naomi. Our doctor does not think there is any added benefit of Deflazacort over prednisolone. He did recommend CoQ10 as well as ECGC I.e. tea catechin. I see you are giving your son 1000 mg/day of l-carnitine....I will…"
Profile Information
- About me:
- My name is maxine Strydom and i am 37 years old. I work in Property development and run Parent Project South africa
- About my family:
- I am married with 3 sons, twins of 16, one has dmd and another son who is 10. We are a happy family dealing with the daily challenges of dmd
- Name(s) of child(ren)/individual(s) with Duchenne:
- Jarryd
- Age(s) of child(ren)/individual(s) with Duchenne:
- 13-18
- City and State:
- durban
- Country:
- south africa
maxine Strydom's Photos
Comment Wall (24 comments)
- At 8:47am on October 12, 2009, Mary-Lou Weisman said…
- Oops. It's South Africa, not Australia, right? I'm a bit dim on my accents -- not to mention my memory.
- At 8:45am on October 12, 2009, Mary-Lou Weisman said…
- Hi Maxine --How come the older I get the farther away Australia gets? Larry and I have kind of pulled back from attending PPMD conferences, but we remain as enthusaistic about and supportive of the organization as ever. We continue to want to know how our friends and their children are doing, so I"m glad you checked in. Love, M-Lou
- At 1:13pm on October 19, 2008,
Julie Garcia said… - Maxine,
Well written on the Discussion forum under Phil Donuhe.
Hugs from Sacramento, California!
Julie
- At 3:34am on August 18, 2008, Julie Garcia said…
- Hey Maxine,
It was great to see you at the conference. Seeing old friends is one of my favorite things about the conference.
I hope all is well.
Take care,
Julie
- At 5:32pm on July 30, 2008,
Lisa Groeger said… - I left real early in the AM on the last day..Unfortunately, I came home to have 2 close friends die suddenly last wednesday and just got home from one funeral and going to another on Friday.. Been a very hard 10 days or so..but I will give you notice if I am showing up on your doorstep..and I won't treat you like a pooo..
- At 5:05am on July 30, 2008,
Lesley Henderson said… - Hi Maxine - I'm not sure if you rec'd my mail address!(I haven't quite found my way around the Site! ) It's lesley@boltcorp.co.za
I look forward to hearing from you, especially about the Conference!
Regards,
Lesley
- At 8:01pm on July 29, 2008,
Kim Innabi said… - Hi Maxine...Congratulations to Jaryyd on the new addition to your family! I love your pictures. Keep in touch from South Africa! Take care,
Kim
- At 4:14am on July 25, 2008, Lesley Henderson said…
- Hello Maxine, Very briefly, I read your page about your son and he sounds so similar to my grandson! He is now 9 and we have decided to take him out of School.His Pre School teacher has offered to teach him "one on one". He has a wonderful vocab & general knowledge & is just "different'. (also has whopping outbursts when frustrated!) Like you, I feel that there is not much understanding or real hope offered in S.A. Please tell me if you know how we go about finding Ethans "deletions?" Regards, Lesley
- At 5:25pm on July 22, 2008, Lisa Groeger said…
- Hey,
I miss you already! Check out the photos I posted..don't be surprised if me and the boys show up on your doorstep one day.. tell Mavis to be prepared!
- At 9:49am on July 19, 2008, Lesley Henderson said…
- Hi Maxine,
Icame upon your home page quite by accident & was so pleased & surprised to find someone else from S.A.! My grandson is 9 yrs old and presents as DMD. His exact condition is ? even though he had a muscle biopsy @ age 3. How do I find out about discovering his deletions? He goes to DR Lippert & Prof Rhodda.He is on pulmison, &has had heel cord surgery.My email address: lesley@boltcorp.co.za many thanks, Lesley Henderson
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Events
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Paint for Peyton to end Duchenne
June 8, 2012 from 6:30pm to 7:30pm – Spirited Art
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