My name is Lisa. I am a Registered Nurse working in WIC and Family Case Management in a Health Department. I love my job because it is flexible and works well for my family. I enjoy being with family & friends and I like meeting other families who are facing similar circumstances.
Our family website is http://jonesfamily91.tripod.com/bradley
About my family:
I have been married to husband for over 22 years. Tom enjoys hunting, fishing, golfing, and grilling. He also does a lot of lay preaching and leads a Bible study group in our home. He is a wonderful husband and father.
Stephanie is our daughter. She is 20 years old and recently got married and moved to the state of Washington. Her husband, Kyle is stationed there in the Air Force.
Bradley is our 16 year old son and he has DMD. He is a Junior in High School. He plays the clarinet in Band. He is enjoys cooking and plans to go to Culinary School after graduation. He has a service dog named Sky from Canine Assistants. She is mostly a companion to Bradley.
Name(s) of child(ren)/individual(s) with Duchenne:
Can you connect with me on the skype. My son with PMD. He is 9.5. He goes to fourth grade. We are from Ukraine. I would like to know how do the family live with PMD in USA. I have lernt an Ehglish for special it. If you have a free time I will be wait your answer to my emal my.science.mail.ru or my skype alina1998831. I have a husband too, and my daughter is 18 old year.
Hi Lisa - sorry for the delay in responding to your questions about the St. Louis race. You are correct - this race is not organized but PPMD but we will have a team that is running together! You can join the team by visiting our website. If you have any additional questions or need more info, email me at email@example.com. I look forward to having you on the team!
Lisa could you tell me alittle about your journey with your sons dog. was it a long wait my Caleb is just starting to fall apart still walking but very hard its the I have no friends and he is so lonly doesnot want to go outside and does not like school we have little dogs but they only like each other and Caleb needs something that is his any info would be helpful thanks Penny
Hey Lisa, you might want to disable the Comment Wall on the Illinois/Missouri Families group. It's better if people are encouraged to start a discussion about that stuff in the group's discussion forum. You can do this under the "edit group" settings. Just thought I'd mention it.
I did leave a post on one of your groups. My name is Leigh and I am the partner of Andrew, whose son has DMD with a duplication of Exon 2. It is fantastic to read all of your posts.
I am happy to say I need only one more mom & son! I have an interview this Sunday afternoon.That leaves my searching for another (1) intrested mom. I am hoping all is well! How is your daughter? Donna
Hi Lisa! I'm sorry it's taken me so long to respond. I'm not too good about getting on here. I really should visit more often...this site is a great resource. We also have a golden retriever. Enjoy your new family member!
Thank you do very much for your support! I really do appreciate your help. Not sure where to turn to locate 4 additional perticipants. And, I am so close to finishing the research. Thought you moms out there could be the best help. Again, thank you.