Lisa Jones
  • Female
  • Illinois
  • United States
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Lisa Jones's Friends

  • Fred Luchetti
  • Gonzalo Monteverde
  • Claire Diemler
  • Traci Canipe
  • semra inanç
  • amit gupta
  • Lisa Crawford
  • Andrew Phillips
  • Nicole Herring
  • Matt O'Harver
  • Gina Kopp
  • Jenise Furman
  • Jeffrey Kopp
  • Ankur Handa
  • Anessa Fehsenfeld

Lisa Jones's Discussions

Behavior Problem

Started this discussion. Last reply by Evelyn Oct 28, 2013. 12 Replies

Increasing Fatigue/Heart Concerns

Started this discussion. Last reply by Lisa Jones Mar 10, 2013. 10 Replies


Lisa Jones

Profile Information

About me:
My name is Lisa. I am a Registered Nurse working in WIC and Family Case Management in a Health Department. I love my job because it is flexible and works well for my family. I enjoy being with family & friends and I like meeting other families who are facing similar circumstances.
Our family website is
About my family:
I have been married to husband for over 22 years. Tom enjoys hunting, fishing, golfing, and grilling. He also does a lot of lay preaching and leads a Bible study group in our home. He is a wonderful husband and father.

Stephanie is our daughter. She is 20 years old and recently got married and moved to the state of Washington. Her husband, Kyle is stationed there in the Air Force.

Bradley is our 16 year old son and he has DMD. He is a Junior in High School. He plays the clarinet in Band. He is enjoys cooking and plans to go to Culinary School after graduation. He has a service dog named Sky from Canine Assistants. She is mostly a companion to Bradley.
Name(s) of child(ren)/individual(s) with Duchenne:
Bradley Jones
Age(s) of child(ren)/individual(s) with Duchenne:
Southern Illinois

Exon Skipping/Stephen Wilton Video

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Lisa Jones's Blog

July 2011 Update on Bradley

Posted on July 23, 2011 at 10:00pm 3 Comments

January 2011 Update

Posted on January 7, 2011 at 2:00pm 12 Comments

July 2010 Update

Posted on July 15, 2010 at 9:30am 0 Comments

January 2010 (Ankle Sprain)

Posted on January 14, 2010 at 10:00am 0 Comments

December 2009 Update

Posted on December 17, 2009 at 10:00am 0 Comments

Comment Wall (69 comments)

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At 1:48pm on February 14, 2017, Margarita Yashchenko said…

Can you connect with me on the skype. My son with PMD. He is 9.5. He goes to fourth grade. We are from Ukraine. I would like to know how do the family live with PMD in USA. I have lernt an Ehglish for special it. If you have a free time I will be wait your answer to my emal or my skype alina1998831. I have a husband too, and my daughter is 18 old year.    

At 10:21am on April 19, 2012,
Nicole Herring

Hi Lisa - sorry for the delay in responding to your questions about the St. Louis race. You are correct - this race is not organized but PPMD but we will have a team that is running together! You can join the team by visiting our website. If you have any additional questions or need more info, email me at I look forward to having you on the team!

At 2:28am on April 26, 2011, Penny Hauer said…
Lisa could you tell me alittle about your journey with your sons dog. was it a long wait my Caleb is just starting to fall apart still walking but very hard its the I have no friends and he is so lonly doesnot want to go outside and does not like school we have little dogs but they only like each other and Caleb needs something that is his any info would be helpful  thanks  Penny
At 11:10am on April 15, 2011, Jeffrey Kopp said…
Hey Lisa, you might want to disable the Comment Wall on the Illinois/Missouri Families group. It's better if people are encouraged to start a discussion about that stuff in the group's discussion forum. You can do this under the "edit group" settings. Just thought I'd mention it.
At 11:11am on January 28, 2011, amit gupta said…

hi lisa, did you mention at one time that dmd patient could fly free to see dr wong? i'd like to know how one could do that...if you have any knowledge please let me know at

thanks a lot and best wishes to you/family.

At 11:52pm on January 17, 2011, amit gupta said…
thanks lisa for your kind replies...will be in touch again...too much going thru our minds right now
At 7:33pm on February 28, 2010, Andrew Phillips said…
Hi Lisa,
I did leave a post on one of your groups. My name is Leigh and I am the partner of Andrew, whose son has DMD with a duplication of Exon 2. It is fantastic to read all of your posts.
Thank you
At 12:51pm on February 12, 2010, Donna Gluck said…
I am happy to say I need only one more mom & son! I have an interview this Sunday afternoon.That leaves my searching for another (1) intrested mom. I am hoping all is well! How is your daughter? Donna
At 11:25pm on January 14, 2010, Anessa Fehsenfeld said…
Hi Lisa! I'm sorry it's taken me so long to respond. I'm not too good about getting on here. I really should visit more often...this site is a great resource. We also have a golden retriever. Enjoy your new family member!
At 4:44pm on January 13, 2010, Donna Gluck said…
Thank you do very much for your support! I really do appreciate your help. Not sure where to turn to locate 4 additional perticipants. And, I am so close to finishing the research. Thought you moms out there could be the best help. Again, thank you.

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