"Hi Veronica,
Yes, there's certainly a wide variation in whether clincis recommend one or two embryos. I think a lot offer two (or sometimes more) because it increases the chances of a pregnancy and therefore benefits their success rates, which…"
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lisa burke
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The cold and change of urine colour.
Started this discussion. Last reply by lisa burke Apr 6. 4 Replies 0 Favorites
flat feet
Started this discussion. Last reply by Teri M. Renken Oct 31, 2011. 8 Replies 0 Favorites
growth
Started this discussion. Last reply by lisa burke Oct 29, 2011. 9 Replies 0 Favorites
lisa burke's Page
Latest Activity
lisa burke replied to Veronica E.'s discussion Getting insurance to cover PGD"Hi Veronica,
No problem at all! I'm happy to answer any questions, and it's nothing that I consider that needs to be 'private'.
We were successful first time (we were told we had about a 30% chance of success - actually slightly…"
lisa burke replied to Veronica E.'s discussion Getting insurance to cover PGD"Hi Veronica,
I don't have any advice to offer you regarding insurance as I live in the UK, but I just wanted to wish you all the very best with the PGD. I've been through it and it resulted in the birth of my beautiful, healthy baby boy…"
lisa burke commented on MommaToo's blog post Since he is gone..."I'm so sorry. My thoughts are with you. God bless."
lisa burke replied to Debbie Schneider's discussion COQ10 versus Idebenone? in the group Medication/Supplement Journals"Hi Govind. I've never seen it in liquid or chewable form, but I just open up the capsule (the Idebenone is actually an orange powder inside) and mix it with a little melted chocolate in ice-cube trays. Once set, you have 'idebenone…"
lisa burke joined MicahsDaddy's group
Medication/Supplement Journals
A place to keep a journal of what medication(s)/supplement(s) you are giving to your child.See More
lisa burke replied to amy's discussion PGD testing for Duchenne"Hi Jennifer,
I'm glad we were able to help you feel better about making a decision. For anyone else thinking of options it's probably worth adding that amnio (and CVS) are really pretty safe procedures but, with the testing you've…"
lisa burke replied to amy's discussion PGD testing for Duchenne"Hi Jennifer. I'm so happy to hear you're having a lovely little girl! It's only my opinion, but in your position i wouldn't have the amino. I was also told that the accuracy of pgd is 97%, but the clinician we saw
let slip that…"
lisa burke replied to lisa burke's discussion The cold and change of urine colour."Hi Tammy. I have some urine testing strips from the hospital and they change colour when dipped in urine. the colour shows what levels of various things are/are not present in the sample. my son's sample was normal (so no blood, infection etc)."
Tammy replied to lisa burke's discussion The cold and change of urine colour."could you explain "dipped his urine...no protein/keytones.."? How and why do you do this? My son was just diagnosed a few weeks ago and I am trying to learn as much as I can. He will be 3 at the end of the summer. …"
lisa burke commented on Pat Furlong's blog post Steroids: A Certain Can of Worms (A Complicated State of Affairs)"Yes, I'm interested to know what these genetic modifiers are too. Do we know if there are there specific mutations that do/don't respond as well as others? My little boy is probably going to start steroids this year so this is ,of course,…"
lisa burke replied to Peter's discussion How your children swallow supplements"Hi Peter. Seth has just turned 3 and we started him in the idebenone when he was about 2 & 1/2. Before that we gave him just protandim (mixed with chocolate too). I've tried teaching him to swallow pills, but with no success. Besides; he…"
lisa burke replied to Peter's discussion How your children swallow supplements"Hi peter. There are no adverse effects that i know of arising from opening the capsule and mixing the powder with something else. We mix it into melted chocolate in ice-cube trays and then, when set, my son just eats it as he would a chocolate…"
lisa burke replied to Jessica Argueta Tucker's discussion Carrier Who Decided to Get Pregnant Anyway in the group Carrier Moms"Hi, I too had pgd and cvs, resulting in my lovely one year old (healthy) boy. It worked first time for us too. I'm not a carrier but i wasn't prepared to take the small risk of having another child with dmd.
You should not feel guilty…"
Profile Information
- About me:
- My 3 year old son has DMD. Deletions of exons 45-50. He was diagnosed just after birth through newborn screening. I have another son aged 1 through pgd and he is healthy.
- About my family:
- We have no family history of DMD. I'm not a carrier.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Seth
- Age(s) of child(ren)/individual(s) with Duchenne:
- 0-3
- City and State:
- Cardiff
- Country:
- Wales
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Lisa burke's Blog
Not sure if this has been posted before. AVI at TIDES Conference.
Posted on May 21, 2009 at 4:52pm 0 Comments 0 Favorites
May 19, 2009 08:00 ETAVI BioPharma, Inc. to Present at TIDES 2009 Conference
AVI-4658 Therapeutic for Duchenne Muscular Dystrophy Featured in 'Innovation Showcase'
PORTLAND, OR--(Marketwire - May 19, 2009) - AVI BioPharma, Inc. (NASDAQ: AVII), a developer of RNA-based drugs, today announced that Peter Sazani, Ph.D., Executive Director of Preclinical Development, is presenting an overview of AVI-4658 today at the at the TIDES Oligonucleotide and Peptide Technology and Product… Continue
AVI-4658 Therapeutic for Duchenne Muscular Dystrophy Featured in 'Innovation Showcase'
PORTLAND, OR--(Marketwire - May 19, 2009) - AVI BioPharma, Inc. (NASDAQ: AVII), a developer of RNA-based drugs, today announced that Peter Sazani, Ph.D., Executive Director of Preclinical Development, is presenting an overview of AVI-4658 today at the at the TIDES Oligonucleotide and Peptide Technology and Product… Continue
Comment Wall (22 comments)
- At 1:10pm on February 28, 2012,
Maria Pezzuolo said… Thank you for your comment really means alot :)
- At 9:26am on September 12, 2011,
Kristina Caldwell said…
Thank you. Your little one is a cutie!
- At 6:57pm on May 21, 2011,
victoria louise june elkington said… - Hi thanks for friend request,I dont come on very often don't get much time either its good to here from u its so hard when there so young everything is so uncertain my son is quite behind his milestones bless him he doesant walk yet I don't no wot the future holds im so sad at the moment I just worry so much its hard to be positive but I have to try not to cry all the time and move forwards and be strong .....so hard be good to message each other as the closeness in age of our some. Xthanks
- At 9:38am on December 13, 2010,
Wyatt's Mommy, Melissa said… You are so close now. Just right around the corner. I'm so sorry that you have been sick. I have just been so sore. I feel like the baby weighs about 20 pounds, just kidding. I was so much easier having a baby in my 20's. Pleasae let me know how everything goes. The hard part has already been done (IVF and genetics stuff) now you can just enjoy the reward. Take care. Have you decided what you are going to name the baby? Our baby is a boy and his name will be Carter. I hope to talk to you very soon Lisa.
- At 12:57am on July 30, 2010,
Rajiv Pandey said… - Thnaks for your response; very qute baby my love to him. Take care.
- At 5:38pm on July 15, 2010, Wyatt's Mommy, Melissa said…
- Thank you so much, Lisa! I appreciate that very much. I am 7 weeks, it seems like so far to go. Christmas Day, what a beautiful day to have a baby. How exciting. I don't know the sex of the baby. I do know however that when we did IVF they put 1 girl and 2 boys back into my uterus. I'm still so amazed by the whole process (PGD - testing for DMD before becoming pregnant, that's unbelievable to me) So I guess the odds are in the favor of a boy. I would love to have a baby girl (my only daughter is 16 years old), but I adore my boys and boys are so easy to raise. I am so glad to hear that Seth is doing well. he's about a year younger than Wyatt. Is Seth talking much? Wyatt doesn't stop, I love to hear their little baby voices. I am like you, right now all I can do is pray, and I try to raise money for research too. We just have to have faith that some smart scientist out there is going to find a great treatment and I truly believe that a treatment is right around the corner. Thanks for the well wishes, I still feel pretty sick most of the day, but that will end pretty soon I'm sure. Good luck with your new baby and keep in touch.
Melissa
- At 10:00am on May 6, 2010,
curtis renard said… - Lisa,
The info you provided regarding stem cell treatments for MS patients is interesting in that the clinic in Costa Rica that we go to, primarily works with MS patients. We have met several while down there and they have had great results. They have only treated 3 boys with DMD. Ryan and Ian from the video and a 7 year old boy from Venezuela. Don't know much about the 7 year old except that his CPK levels are now normal.
- At 10:32am on March 25, 2010,
Jessica Divin said… - Thanks for your comment about our picture! It is so nice to hear some kind words as this has been a tough week for us. Your little one is a cutie!
- At 9:06pm on June 23, 2009,
Kristen McSwain said… - Hi Lisa from one Seth's mom to another! I'm sorry it's been a while since you said hello to me. I sort of run hot and cold with this site. Your Seth is SO cute! Mine had redish hair when he was a baby too.
- At 10:55pm on June 16, 2009,
Jennifer Shumsky said… - Your son keeps getting cuter with every picture you post!!! I could just squish him forever!!!
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