Started this discussion. Last reply by Jeffrey Kopp Jun 26, 2020. 2 Replies 0 Favorites
Our 10-year-old son, Liam, would like to find some new buddies to play some games on his Playstation4. He likes NHL 20, Apex Legends, Star Wars Battlefront 2, MLB The Show, Madden NFL 20, Fortnite,…Continue
Started Sep 20, 2016 0 Replies 1 Favorite
Do you shop on Amazon? If so, you can donate money to PPMD with every purchase and it won't cost you anything. You just need to set up "The Parent Project for Muscular Dystrophy Research Inc" as your…Continue
Tags: fundraising, smile, amazon, donations, charity
Started this discussion. Last reply by bob Sep 17, 2012. 13 Replies 0 Favorites
I've been considering setting up an actual 501(c)(3) nonprofit corporation for raising money for our son's needs and to also funnel more funding to PPMD. I have found similar Duchenne fund websites…Continue
Tags: funds, starting, trust, foundation, organization
Started this discussion. Last reply by Jon Moulton May 24, 2011. 7 Replies 0 Favorites
Are any of you guys on Twitter? I've found that following @Duchenne_Tweats,…Continue
Tags: social networking, twitter
Posted on April 27, 2016 at 3:37pm 0 Comments 0 Favorites
We finally have some very promising news for the development of adequate treatment for our boys with mutations requiring double or multi exon skipping!
In reading through this article about injecting a fully functional version of the dystrophin gene into the body using a harmless virus, it doesn't mention anything about applicability of multi-…
ContinueHi Jeff! Thanks for adding me as a friend. I enjoyed seeing the pictures of your family. Your sons are very handsome. I'm sorry to hear about Liam's diagnosis. Our son was diagnosed at the age of 3 years. He is 14 years old now and to our surprised, he continues to walk with very little use of the wheelchair. Thank you for all of your efforts with fundraising. By any chance are you and your wife planning to participate in the St. Louis Run for Our Son's event on October 23rd? I have registered as a Spirit Runner.
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