Thank you Kimmy, I will look it up tonight after work, I have to eat my oatmeal and get my butt in gear this morning! I have something to look forward to all day, thanks!
Hi Kimmy, glad to hear the interview went well. If you are able to get to the on-line article, just copy and paste the link (browser box) that is at the top of the page and send it to me here or in an email. Would love to read it. Good on you for winning the bet with your Mom! You are both good sports.
Team Super Simon raised $5800. so he won the prize...again. But then when we got home we had the sad news that one of the DMD boys had died, age 22. He was going to be a film maker, had already done a few shorts on his own.
Kimmy- eteplirsen is still in trial, right now in ambulatory boys. There has been no research of this drug in the non-ambulatory patients, so we don't yet know if this drug may have benefits for people living with Duchenne who are no longer walking. Hopefully future trials with eteplirsen will give us that information.
Thank you for your note, Kimmy. We want to help fight DMD by creating awareness and putting a face to the ravages of this awful disease. It is nice to meet you. Let's keep in touch.
Thanks Kimmy Watters. We are doing really well considering. We have had to make some very quick changes to our lives and are now seeing his illness for what it is rather then living in a state of wonderment and worry. Luckily I connected to this community and our local FACES which has made this transition so much easier. We are very fortunate to live in this age of technology, I could not image of others managed prior.
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hi kimmy its been a long time since we have talked or emailed. hope things are well on ur end. Things are not so great on mine.
There's No Stopping Kimmy Watters!
http://www.thenewstribune.com/2014/06/10/3237557/theres-no-stopping-kimmy-watters.html
Thank you Kimmy, I will look it up tonight after work, I have to eat my oatmeal and get my butt in gear this morning! I have something to look forward to all day, thanks!
Hi Kimmy, glad to hear the interview went well. If you are able to get to the on-line article, just copy and paste the link (browser box) that is at the top of the page and send it to me here or in an email. Would love to read it. Good on you for winning the bet with your Mom! You are both good sports.
Team Super Simon raised $5800. so he won the prize...again. But then when we got home we had the sad news that one of the DMD boys had died, age 22. He was going to be a film maker, had already done a few shorts on his own.
Dear Kimmy,
You are allowed to feel sad and a bit down, that's normal when we miss someone...take your time.
Hugs,
A.
StaffKathi Kinnett said…
StaffKathi Kinnett said…
Kathi
Thank you for your note, Kimmy. We want to help fight DMD by creating awareness and putting a face to the ravages of this awful disease. It is nice to meet you. Let's keep in touch.
he is able to be outside but he likes the inside unless you at the beach
Thanks Kimmy Watters. We are doing really well considering. We have had to make some very quick changes to our lives and are now seeing his illness for what it is rather then living in a state of wonderment and worry. Luckily I connected to this community and our local FACES which has made this transition so much easier. We are very fortunate to live in this age of technology, I could not image of others managed prior.
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