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kimmy watters
  • 46, Female
  • tacoma, wa
  • United States Minor Outlying Islands
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Kimmy watters's Friends

  • Toby Roberts
  • Mike Verdonk
  • Katie
  • Christopher M. Jones
  • Misty Atkinson
  • Nicole  France
  • Kareen Shanks
  • Mary G. Connolly
  • danielle
  • Cheryl Hartwig
  • Aimee
  • Jennifer Edge
  • Nancy DiDomenico
  • Andrea Cleary
  • Betty Vertin
 

kimmy watters's Page

Latest Activity

danielle left a comment for kimmy watters
"hi kimmy its been a long time since we have talked or emailed. hope things are well on ur end. Things are not so great on mine."
Nov 29, 2014
kimmy watters replied to Mike O's discussion Ice bucket challenge
" i am going to this challenge no matter what if. als can raise  15.6 million  dollars so can we. kimmy"
Aug 18, 2014
kimmy watters commented on Sharon Hesterlee's blog post No Exon Left Behind
" hi sharon i have question  exon skipping   43  are the drug company  began  trails  in  jan 2015"
Jul 22, 2014
Andrea Cleary left a comment for kimmy watters
Jun 12, 2014
Andrea Cleary left a comment for kimmy watters
"Thank you Kimmy, I will look it up tonight after work, I have to eat my oatmeal and get my butt in gear this morning! I have something to look forward to all day, thanks!"
Jun 12, 2014
Andrea Cleary left a comment for kimmy watters
"Hi Kimmy, glad to hear the interview went well. If you are able to get to the on-line article, just copy and paste the link (browser box) that is at the top of the page and send it to me here or in an email. Would love to read it. Good on you for…"
Jun 4, 2014
Andrea Cleary left a comment for kimmy watters
"Dear Kimmy, You are allowed to feel sad and a bit down, that's normal when we miss someone...take your time. Hugs, A."
May 11, 2014
Andrea Cleary commented on kimmy watters's photo
Thumbnail

miss pepper and kimmy

"Great photo of 2 great little ladies!"
May 8, 2014
kimmy watters posted a photo

miss pepper and kimmy

pepper an kimmy celebrtae life
May 8, 2014

Staff
Kathi Kinnett left a comment for kimmy watters
"Kimmy- eteplirsen is still in trial, right now in ambulatory boys. There has been no research of this drug in the non-ambulatory patients, so we don't yet know if this drug may have benefits for people living with Duchenne who are no longer…"
Apr 18, 2014

Staff
Kathi Kinnett left a comment for kimmy watters
"Hi Kimmy! I'm not sure what drug you are referring to? Kathi"
Apr 16, 2014
kimmy watters replied to Jason Darienzo's discussion Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne.
" what is thenext step when are we going to  form the white house.kimmy"
Mar 26, 2014
kimmy watters favorited Christopher M. Jones's profile
Feb 5, 2014
Andrea Cleary left a comment for kimmy watters
"Hi Kimmy, I sent you an email response to the message you sent the other day, but maybe you did not get it with the Hotmail problems. All is well here, just gearing up for school to start on Thursday. Simon is even packing his new back pack on…"
Aug 25, 2013
kimmy watters commented on Will Nolan's event Harvest The Dream Dinner & Auction
" hey janelle  sheri and i will be there.kimmy"
Aug 14, 2013
kimmy watters is attending Will Nolan's event
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Harvest The Dream Dinner & Auction at Greater Tacoma Convention Center

September 14, 2013 from 5:30pm to 9pm
This is your invitation to DREAM with us. We are the parents of Addison, Micah, and Jacob, just a few of the boys living in the Puget Sound area suffering from Duchenne Muscular Dystrophy (DMD). Our DREAM event will fund research toward a cure to their disease. We hope you’ll choose to join our DREAM team along with Parent Project Muscular Dystrophy and be part of the event.See More
Aug 14, 2013

Profile Information

About me:
i just love my family, and i now love life, i appercatie at begin heathly.
About my family:
my friend of mine, little boy is fighter and i am very proud of him at what he does every day
Name(s) of child(ren)/individual(s) with Duchenne:
none
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
tacoma, wa

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Comment Wall (50 comments)

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At 9:21pm on November 29, 2014, danielle said…

hi kimmy its been a long time since we have talked or emailed. hope things are well on ur end. Things are not so great on mine.

At 9:46pm on June 12, 2014, Andrea Cleary said…
At 5:42am on June 12, 2014, Andrea Cleary said…

Thank you Kimmy, I will look it up tonight after work, I have to eat my oatmeal and get my butt in gear this morning! I have something to look forward to all day, thanks!

At 8:47pm on June 4, 2014, Andrea Cleary said…

Hi Kimmy, glad to hear the interview went well. If you are able to get to the on-line article, just copy and paste the link (browser box) that is at the top of the page and send it to me here or in an email. Would love to read it. Good on you for winning the bet with your Mom! You are both good sports.

Team Super Simon raised $5800. so he won the prize...again. But then when we got home we had the sad news that one of the DMD boys had died, age 22. He was going to be a film maker, had already done a few shorts on his own.

At 12:22am on May 11, 2014, Andrea Cleary said…

Dear Kimmy,

You are allowed to feel sad and a bit down, that's normal when we miss someone...take your time.

Hugs,

A.

At 7:24am on April 18, 2014,
Staff
Kathi Kinnett
said…
Kimmy- eteplirsen is still in trial, right now in ambulatory boys. There has been no research of this drug in the non-ambulatory patients, so we don't yet know if this drug may have benefits for people living with Duchenne who are no longer walking. Hopefully future trials with eteplirsen will give us that information.
At 11:02pm on April 16, 2014,
Staff
Kathi Kinnett
said…
Hi Kimmy! I'm not sure what drug you are referring to?
Kathi
At 5:27pm on August 25, 2013, Andrea Cleary said…

Hi Kimmy,

I sent you an email response to the message you sent the other day, but maybe you did not get it with the Hotmail problems. All is well here, just gearing up for school to start on Thursday. Simon is even packing his new back pack on wheels right now, getting organized. But first is the last visit of clinical trial year 2, so it is a big one, all day testing at 2 separate sites. Went to JF's friend's house last evening for supper, and we hadn't seen them in awhile, so it was nice to catch up (he's been in a grumpy mood lately). They live out in the country so the boys made a bonfire and that also helped keep some of the bugs away and took the chill off.

How are you and mom doing? And the training? I like this photo of you training with mountains and water falls behind you...very cool! Easier to stay motivated with that view, I bet?

Well, have to go make supper now Kimmy, fajitas tonight. Take care,

Andrea

At 6:47pm on April 15, 2013, Andrea Cleary said…

Hi Kimmy, how are you doing? We had a late snow storm last Friday which has all melted again, so spring is finally here. We are all good, and leaving for Disney and LEGOLAND next Wednesday. It doesn't seem like a reality yet, but I hope it kicks in soon because I have to get us prepared and packed! I did buy some sunscreen today though. Hope you and your mom are well. Andrea

At 11:35pm on March 14, 2013, Christopher M. Jones said…

Thank you for your note, Kimmy.  We want to help fight DMD by creating awareness and putting a face to the ravages of this awful disease.  It is nice to meet you.  Let's keep in touch.

 
 
 

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