kathy mcdonald
  • Female
  • grand island, FL
  • United States
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  • sandy bagley
  • Windy Jackerson
  • Vicky Williamson
  • Kimberly Foernsler
  • Eunice Rivera

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Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Alex, passed away November 29, 2009
Age(s) of child(ren)/individual(s) with Duchenne:
Grand Island, FL

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Kathy mcdonald's Blog

ikan bowler

Posted on September 14, 2009 at 2:45pm 0 Comments

My 17 year old Alex in Florida is bowling on the High School bowling team. He also bowls on the Quad Squad twice per month. The engineer who designed the IKAN bowler is there every other saturday when Alex bowls. Check out this device available to all wheelchair users. It is one of the best things you can do for your family member confined to a wheelchair. It gives them independence to actually participate in a sport.

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At 5:38pm on January 14, 2010, Windy Jackerson said…
Hi Kathy,
I so sorry to hear about your son. I can't even imagine how you feel. Know that he is at peace. My husband is a firefighter for Lake County Fire Rescue. That is how he heard about your son and then told me about it. We haven't found any families that live near to talk to about this disease. Our son was diagnosed Sept. 08. He was only 18 months old. He will be 3 March 7 and I am having another boy April 1.

Needless to say, we had never even heard about DMD until Skyler was diagnosed. I couldn't believe what we were being told because all I read was it was a genetic disorder that affected boys who had it in their family. That is not Skyler's case. It is not in our family and I was tested and I am not a carrier, so we have had a hard time believing. He has a nonsense point mutation.

I would love to talk to you if you are up to it. Just let me know. Take care.
At 6:40pm on December 9, 2009, Kimberly Foernsler said…
Oh Kathy I am so so sorry to hear about your son. I didn't post the picture of the angel but I forwarded onto some friends. I can't remember who posted it either. I will go through my archived emails and find it for you and send you an email. Again, I'm so sorry about your son. I hate hearing that another boy has passed away from this. I've been where you are and it does get easier. I can't say it gets better because it will never be better that our children are gone!! Just knowing that they are in Heaven doing all the things they couldn't do here makes me happy. If you ever need to talk I'm available and I'll be glad to share my phone numbers!!

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