I am a military member and have been in the AF for 11 years. I have been stationed here in Lousiania for my entire career. I'm looking for any information for funding, to medication, to any elpful advice that will help our son enjoy and improve his quality of life.
About my family:
I am married to my wife of 11 years Dawn, I have two daughters Starra (10) Melody (4) and my son Maverick (8) whose has been diagnosis with mild to severe BMD. He is progressing to fast to be beckers so we are going to CCHMC for a second opinon. The treatment he has been given is way incorrect and has lacked the proper medical evals. that are standard for his prognosis.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
Barksdale AFb LA
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Jeremy, Welcome to PPMD Community. You will find a lot of help, info. and support here. There are some groups you should consider joining like Dad's Only, Dr. Wong and Cincinnati Children's Hospital and Becker Parents for example. When are you going to CCHMC?