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Drop for Duchenne & Fall Festival - Help Needed

Started this discussion. Last reply by MicahsDaddy Nov 10, 2009. 17 Replies

 

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Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Jacob
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Lansdale

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At 5:18pm on January 10, 2009, Julie Garcia said…
Hi,

Are you still interested in sharing a room Sunday in DC? I was looking for your e-mail and could not find it.

Let me know.

Thanks,

Julie
At 8:28pm on September 18, 2008, Darcy Tumminello said…
I just noticed post about Dr. Phil show. That's great! I support newborn screening and the word needs spread. My son was adopted and all children should be tested. Did not run in the family! We thought we had a beautiful healthy son...We do have a beautiful son! A special son...don't get me wrong....wouldn't trade him for anything...he is our only child and just can't imagine this happening to another family. Newborn testing should be automatic..

Thanks
Darcy in PA
At 2:18am on August 26, 2008, Darcy Tumminello said…
Hello,

I noticed my son has the same quad. A great investment. He loves it. My son also rides horses..Just curious how often Jacob rides and if you think it's helping. My son rides only 1/2 hr a week and it seems to really be helping his trunk muscles. Does your insurance cover the riding lessons?

Thanks
Darcy
 
 
 

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