I am a single momI. I have a daughter who is 18. My son Dylan is 15, attending Harborfields High School in Greenlawn, NY . Dylan was diagnosed when he was 5. He is presently in a power chair. He loves sports and is involved in school in the area of management. This keeps him involved with his peers and it has helped him socially.
About my family:
We are currently planning to build an accessible home for Dylan. We are very active in making the 2nd week of February, annually in New York. Presently Suffolk County, Long Island is making this start in 2010. We are hoping to have the rest of Long Island adopt the same. We would love all members to help us carry this through by writing letters to government and school official to help promote Duchenne Muscular Dystrophy Awareness week official starting in Long Island. Please write to all of your school official in your district if you have a child in that district.
Name(s) of child(ren)/individual(s) with Duchenne: