frost's Page

After reading around this section, I noticed most of your kids are on deflazacort. Where we live, prednisone is probably the only option. I was just wondering if those of you who have/had children who are/were taking prednisone could write as much as you can about you experience? How old is your child, how long has he been taking prednisone, what were the side effects, what was good, what was bad and why did you stop(if you did). See More

HelloNot sure I posted in a correct section, feel free to move this if necessary.My name is S. and I've got a son, Emin, who is 6 years old and was diagnosed with DMD about half a year ago. I've been lurking around this site for a while, but never posted anything yet. Em has classic autism, which he was diagnosed with when he was 3 years old. He's non verbal and we're dealing with a lot of issues. His communication is very limited, as is his understanding. He has been in the hospital for more…See More