My name is Donna Mckenzie. I am the mother for 4 boys. They are 26, 23, 17 and 15. My husband is retired from Airforce and we live in Tacoma Wa. We have lived here for 8yrs. and Washington is growing on me.
About my family:
My son Ryan is 15 yrs old and has DMD. He was diagnosed with it at age 5. While is can be emotionally draining at times, i know God has been here with us and he will contiue to be with us no matter what the future brings. I am praying that God will do mighty things in and through Ryan's life! Ryan is the youngest of 4 boys and the only one affected by DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
If you contact them they may already have something scheduled for your part of the world or would schedule some time to come that way as they go all over the state with their equipment. They are the only group I am aware of with this kind of set-up. I will check in with some folks at Mary Bridge (I used to work there) and see if there is anything new in that part of the world but I am not aware of anything. I will let you know what I find. I hope you and your family enjoy the sunny weekend! Take care Donna.
I saw a post from you, I think, on PPMD website and thought I would reply. If it is not from you, I apologize :) The post was about recreational activites in the Seattle area and if you have not already checked out Outdoors for all the would be worth looking at. They have a side by side tandom bike that your son could ride with you or a volunteer and they also have accessible hikes. They are a great resource. I hope this post was from you and even if not I hope it is helpful :) . Have a great evening. Jennifer Martyn