"We saw on Friday for the first time the new neurologist at CHOPhiladelphia,Over all our son still meintaining about the same since last December,The previous neurologist put him on 9mg of Deflazacort once daily,b/c of non growth issues.Since last…"
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djamel fathi
- Male
- Wildwood, NJ
- United States
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djamel fathi's Discussions
Holistic medication
Started this discussion. Last reply by Tammy Apr 3. 1 Reply 0 Favorites
welcome little sister laila fathi
Started this discussion. Last reply by Veronica E. Nov 12, 2009. 2 Replies 0 Favorites
HOPE FOR KIDS WITH DMD.
Started Aug 30, 2009 0 Replies 0 Favorites
Welcome, djamel fathi!
Latest Activity
djamel fathi replied to danielle's discussion why"Indeed,it's GOD willing keep faith on GOD HE can change things to better,also each person is different then there is no perfect one.Take care."
Tammy replied to djamel fathi's discussion Holistic medication"I would be very interested to know this too... Or at least a doctor who is more nutrition based..."
djamel fathi posted a discussionHolistic medication
Hi,I would like to hear from parents who are given holistic medication to their kids.I just heard about Dr Rashid Buttar from N.Carolina who seem having some succes w/different illeness.I contacted his office to get some information,if he did deal w/DMD,if so what are the steps,,,They refuse to release any information until I make an appt to talk to the doc or visit him in N.Carolina.If any body did went this way please give us a feed back about your experience.Thank you,See More
djamel fathi replied to Dina's discussion emotional overdrive"Hi,We all are in the same situations where sometimes you look at our kids,you try to do your best, but the reality is harde.All we can do is pray for them and for our selves also.asking God to give us the streinght and the courage to face…"
djamel fathi replied to maxine Strydom's discussion IDEBENONE"What the dosing of Idebenone ? for a boy weighing around 68lbs."
djamel fathi replied to maxine Strydom's discussion IDEBENONE"Hi,I would like to know what's the dosing mg/kg for our kid,also what the different dosing Idebenone comes.
Does it make the difference with your kids? Thank you,"
Profile Information
- About me:
- About mohamed my son, is very social,smart ,likes swimming ,likes star wars and indiana jones ,he like to walk , wish every day get better than he can play soccer, it's his dream ,he want to be a doctor when he grows up to help every body and hope to END DUCHENNE very soon ,and he say :I FEEL BAD ABOUT ME AND ALL KIDS who HAVE A DISEASE.
- About my family:
- We're six of us,Djamel[father],Zahia[mother],Mohamed ali[son]with DMD, Imene[daughter], Laila{daughter},and Sabrin{daughter}.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Mohamed ali:10 yrs old.
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- North Wildwood,nj
- Country:
- USA
djamel fathi's Photos
Djamel fathi's Blog
fundraising,
Posted on December 19, 2008 at 10:50pm 0 Comments 0 Favorites
Hi,every body since we find out about our son with DMD in last august,we been devastated about the news ,.We wanted to know every little information about this desease,wich We didn't get much from the first neurologist.
After our first meeting with ppmd at fort lee,nj We been very happy with the parents and the staff of ppmd,they're wonderfull,since that day I been thinking about a way how to raise money for our kids,I did talk to many people to help me raise money,wich I start at marina… Continue
After our first meeting with ppmd at fort lee,nj We been very happy with the parents and the staff of ppmd,they're wonderfull,since that day I been thinking about a way how to raise money for our kids,I did talk to many people to help me raise money,wich I start at marina… Continue
Comment Wall (49 comments)
- At 11:34am on November 27, 2010,
Nabeel Ahmed said… - Assalam-o-Alaikum
Sorry for Late reply, Thank you very much for your cooperation,
We are nothing, If we can help other we feel good, Actually the person who need wheel chair he can not reach internet, He contact me and i wrote you,and you know the problem of patient very well.
Recently I have seen a new patient of muscular dystrophy about 7-8 year kid, his sister also got this decease, but she died 15 days ago in den-gee fever in the age of 12, may ALLAH help all of us.
Thanks, Salam
Mehboob Ahmed
- At 12:51pm on November 9, 2010, Nabeel Ahmed said…
- Salam-o-Alaikum
How r u and how is your son, give my love to Muhammad Ali.
One of my friends son aged 14 years he is also suffering from Muscular dystrophy,and need a power wheel chair for him, He want to purchase a use Power Wheel Chair. please check at your sight,If you found please inform me. I will He will buy.
Recently One more case found in our relative.
Salam to you and your family
Take Care
Mehboob
- At 3:43am on September 23, 2010, Nabeel Ahmed said…
- Salam:
Thank you very much,
- At 10:30am on September 22, 2010, Nabeel Ahmed said…
- Assalam-o-Alaikum
How R U, Can i know the brand name of steroids available in USA,please reply with name.
Thnks
Mehboob Ahmed
- At 5:58am on September 18, 2010, Nabeel Ahmed said…
- Thanks for your reply and suggestion to keep Nabeel Strong.....
How is Muhammad Ali and what is he doing now ?
- At 2:18pm on September 14, 2010, Nabeel Ahmed said…
- Salam-o-Alaikum
Eid Mubarik,
How R U , I have seen that Nabeel (my son )feeling weakness, is there any medicine to keep him strong,that he can hold water glass as usual boy can, and make himself perfect in hand writing.
- At 7:57pm on December 16, 2009,
Paul Johnson said… - Djamel,
I just read your story in the Philadelphia Inquirer... what a tough situation, I hope things work out for you and your family. Best wishes...
Regards,
~P
- At 2:48pm on December 14, 2009,
baljit kaur said… - Hello Djamel,
My name is Baljit my son Arun is 9yrs old.I was just going through this site and noticed your pictures. Your family is beautiful. Was your son at the mda camp in Worester,PA from June 14-20 2009?My son was there and I think they know each other.When he talks about camp he always mentions Mohamed and how funny he was.
Take care and let me know if I have the right Mohamed.
Bye
Baljit
- At 7:10pm on December 9, 2009,
Hadi Kelany said… - Salaam Olakom my dear Brother
peace of Allah SWT be always with you
this treatment focus on 3 parts of body
blood, kidney , small tenstion and thus it can helps the child alot to impove his state
- At 9:30pm on November 4, 2009,
StaffRyan Fischer said… - Hey my friend!
I will call you tomorrow, Pat sent me an email this evening. We will definitely reach out tomorrow.
RYAN
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Paint for Peyton to end Duchenne
June 8, 2012 from 6:30pm to 7:30pm – Spirited Art
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