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deweer
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  • Hainaut
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Latest Activity

deweer commented on PPMD's blog post Santhera Updates on U.S. Regulatory Filing for Raxone® (idebenone) in Duchenne
"FDA Vous n'avez pas encore compris que la FDA refuse tout traitement pour DMD saut d'exon, raxone encore 3 ans combien de patients vont souffrir et mourir en 3 ans la FDA dit Non et dira toujours non Il faut trouver un MOYEN juridique…"
Jul 23, 2016
deweer replied to Jason Darienzo's discussion Targeting β1-integrin signaling enhances regeneration in aged and dystrophic muscle in mice
"on s"en fout pour le moment "integrin" dans 10 ans peut être il y a autre chose SMTC1100??????????????????? le temps presse, il y a urgence; priorité à SMTC c'est du British du prof Davies, en avant toute; pas…"
Jul 9, 2016
deweer added 2 discussions to the group MDA Staff
May 29, 2016
deweer joined Kari's group
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MDA Staff

Let's gather together MDA staff who are fighting to end DMD/BMD. MDA is hope, help, knowledge.
May 29, 2016
deweer commented on Abby Bronson's blog post DRSC Definitions
"SMTC1100  accélérons URGENCE  summit plc  semble plus intéressé par la finance  cotation en bourse "
May 17, 2016
deweer commented on Abby Bronson's blog post DRSC Definitions
"smtc1100 + 5 mois de retard sans raison inadmissible que font la ppdm pas de réaction: la fatalité cpmme toujours ;'est comme cela; on préfère les grands discours. DECEVANT"
May 17, 2016
deweer replied to wainaina muiruri's discussion Any new info on SMT C1100?
"i am french i am a patient  i aim afraid i aim not time,"
Feb 28, 2014
deweer replied to Jason Darienzo's discussion Researchers rejuvenate stem cell population from elderly mice, enabling muscle recovery
Feb 28, 2014
deweer replied to wainaina muiruri's discussion Any new info on SMT C1100?
"Le prof Kay davies parle d'un "nouveauSTC1100" et l'essai phase2 du premier SMT100 est encore très loin à l'horizon,  ABSURDE  ils se moquent de tous les patients ( honteux)"
Feb 28, 2014
deweer replied to wainaina muiruri's discussion Any new info on SMT C1100?
"ces gens jouent en bourse avec des médicaments , ce sont avant tout des financiers et non des docteurs problèmes de spéculation en bourse ne vous laissez pas faire vous n'avez rien à perdre des gens meurent dans le…"
Feb 28, 2014
deweer replied to wainaina muiruri's discussion Any new info on SMT C1100?
Feb 28, 2014
deweer replied to wainaina muiruri's discussion Any new info on SMT C1100?
"il faut protester, des gens vont mourir, il sera trop tard tous ensemble pour faire accélerer sinon les délais vont s'éterniser ce sont avant des financiers et puis seulement des docteurs l'argent on parle que…"
Feb 28, 2014
deweer replied to wainaina muiruri's discussion Any new info on SMT C1100?
"merci la FDA principal cause du retard bande de fossoyeurs, faux jetons 48 semaines au lieu de 24 à quoi sert alors les biomarqueurs qui devait faire avancer les choses très vite"
Feb 28, 2014

Staff
PPMD left a comment for deweer
"Welcome Deweer! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.   Please don't hesitate to contact us by phone,…"
Mar 1, 2012
deweer is now a member of PPMD Community
Feb 27, 2012

Profile Information

About me:
myopathie de becker
City:
Erbisoeul

Comment Wall (1 comment)

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At 2:30pm on March 1, 2012,
Staff
PPMD
said…

Welcome Deweer! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
 

Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org

 

And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to parents & families of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.

 
 
 

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