curtis renard
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  • Wichita, KS
  • United States
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curtis renard's Discussions

More Positive Results on Stem Cell Treatments in Costa Rica

Started this discussion. Last reply by Lisa Mancin Jun 8, 2010. 41 Replies

I would like to start by introducing myself. My name is Curt Renard and I am the stepfather of Ryan Benton. Ryan, as most of you may recall, is the person that started a great deal of discussion in…Continue

Tags: Ryan Benton, Costa Rica, stem cell treatments

 

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Arlington Babb favorited curtis renard's profile
Mar 3

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
wichita, ks

Comment Wall (35 comments)

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At 7:02pm on August 12, 2011, Blanca Wainberg said…

Dear Mr. Renard:

My name is Blanca Wainberg and I live in Panama City. I´m taking the liberty to contact you because I would like to contact Dr. Riordan and I was hoping you could help me with that. My son is now five years old and he was diagnosed with DMD since he was 2. As any other concerned parent, I will do anything to help improve my child's life. S please if you could me this little favor I would very much appreciate it.

Thank you in advance

Blanca

At 10:43am on August 8, 2011, Benjamin Messonnier said…

Dear Curt

My name is Benjamin Messonnier i am a friend of Ryan from Facebook ,i am sorry  i send many e-mail to you because i need your help for  show to french association of muscular dystrophy that the thérapy of the Dr riordan is a reality and could remake dystropheen

that why i think , if you could send me  the  diagnostic and document  of Ryan  for show that Ryan  have a duchenne muscular dystrophy and the result of the traitement of Dr riordan  for see the level of dystropheen

thank you

Benjamin

At 3:55pm on October 12, 2010, Lisa Mancin said…
Hi Curt,
Glad to hear from you. My number is 816-431-4060. Whenever you have a chance...would love to catch up. Take Care.
Lisa
At 6:50pm on September 28, 2010, Lisa Mancin said…
Hello Curtis,
I just wanted to say hello and check in with you. It has been too long!! I have been thinking of you, Ryan and your family and hope all is going well. Maybe we could talk on the phone and catch up on things.
We keep you all in our prayers.
Lisa
At 6:33pm on June 3, 2010, Lisa Mancin said…
Hello Curtis,
I am so sorry to hear about Dr. Riordan's clinic. I am sure you and your family must be very upset. It is extremely disappointing for all of us.

I may be way out of line here, but doesn't the timing seem a little strange?? You have made the effort to let Ryans story be known.. and now the clinic is shut down??? It almost seems as if someone is making sure that the subject is closed.. on stem cell treatments.

I know you are getting swamped with messages. Let me know if I can help in any way.

Lisa
At 4:36am on May 13, 2010, RAKTIM SINGH said…
Hi Curtis,
I am in India and am in touch with 3 doctors who had done/doing MSC treatment for DMD patients in last 6 months. Results are still awaited. Unfortunately, these were not done under any protocal.
Yesterday, I met another doctor/stem cell reseracher who is interested in starting clinical trial under CTRI ( Indian government trial site) with Adipose derived MSC.

I wanted to connect with Dr Riordan so as that I can connect these 2 and learning can be consolidated.I wanted to get more details on the ryan's case. Can you help us out here.

Also plese keep us posted on any further updates here.

MAY GOD BLESS YOUR FAMILY.
Raktim
At 2:52pm on May 11, 2010, Lisa Mancin said…
Hi Curtis,
I was sorry to hear that your mother had to have surgery. I hope she is doing okay. I have been following the comments posted after your story. I could continue to post more, but I though I might wait until Pat makes a comment. Did you have any luck contacting her? I will continue to follow. Let me know if you need anything.
Take Care,
Lisa
At 9:45am on May 10, 2010, Traci Strafuss said…
Hi Curtis. I sent a message to your Inbox. TS
At 2:43pm on May 7, 2010, Tonya Carlone said…
Hi,

Thanks for coming out with this information to our families. I am interested, we did PGD/IVF to add to our family, but to also get the stem cells from our babies umbilical cord as well as placenta for our sons future. It was just in case something like this came along.
At 3:01pm on May 6, 2010, Lisa Mancin said…
Hi!
Sounds good..I will be looking forward to it. Good luck with Pat!
Lisa
 
 
 

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