I would like to start by introducing myself. My name is Curt Renard and I am the stepfather of Ryan Benton. Ryan, as most of you may recall, is the person that started a great deal of discussion in…Continue
My name is Blanca Wainberg and I live in Panama City. I´m taking the liberty to contact you because I would like to contact Dr. Riordan and I was hoping you could help me with that. My son is now five years old and he was diagnosed with DMD since he was 2. As any other concerned parent, I will do anything to help improve my child's life. S please if you could me this little favor I would very much appreciate it.
My name is Benjamin Messonnier i am a friend of Ryan from Facebook ,i am sorry i send many e-mail to you because i need your help for show to french association of muscular dystrophy that the thérapy of the Dr riordan is a reality and could remake dystropheen
that why i think , if you could send me the diagnostic and document of Ryan for show that Ryan have a duchenne muscular dystrophy and the result of the traitement of Dr riordan for see the level of dystropheen
I just wanted to say hello and check in with you. It has been too long!! I have been thinking of you, Ryan and your family and hope all is going well. Maybe we could talk on the phone and catch up on things.
We keep you all in our prayers.
I am so sorry to hear about Dr. Riordan's clinic. I am sure you and your family must be very upset. It is extremely disappointing for all of us.
I may be way out of line here, but doesn't the timing seem a little strange?? You have made the effort to let Ryans story be known.. and now the clinic is shut down??? It almost seems as if someone is making sure that the subject is closed.. on stem cell treatments.
I know you are getting swamped with messages. Let me know if I can help in any way.
I am in India and am in touch with 3 doctors who had done/doing MSC treatment for DMD patients in last 6 months. Results are still awaited. Unfortunately, these were not done under any protocal.
Yesterday, I met another doctor/stem cell reseracher who is interested in starting clinical trial under CTRI ( Indian government trial site) with Adipose derived MSC.
I wanted to connect with Dr Riordan so as that I can connect these 2 and learning can be consolidated.I wanted to get more details on the ryan's case. Can you help us out here.
Also plese keep us posted on any further updates here.
I was sorry to hear that your mother had to have surgery. I hope she is doing okay. I have been following the comments posted after your story. I could continue to post more, but I though I might wait until Pat makes a comment. Did you have any luck contacting her? I will continue to follow. Let me know if you need anything.
Thanks for coming out with this information to our families. I am interested, we did PGD/IVF to add to our family, but to also get the stem cells from our babies umbilical cord as well as placenta for our sons future. It was just in case something like this came along.