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connie lainez
  • Female
  • Lenoir, NC
  • United States
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Latest Activity

connie lainez added a discussion to the group Exon skipping 53
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exon 53 skipping

My grandson has 49-52 exon skipping he is 12 years oldSee More
Feb 16
connie lainez commented on Amrit's group Exon skipping 53
"My grandson has 49-52 exon he is 12 years old"
Feb 16
connie lainez joined Amrit's group
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Exon skipping 53

Hi,My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped.Thanks,AmritSee More
Feb 16
connie lainez might attend PPMD's event
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[Upcoming Webinar] NS Pharma's Exon 53 Skipping Program – Trial Recruitment and Update at Online Webinar - Eastern Time Zone

February 22, 2017 from 1pm to 2pm
Wednesday, February 22 at 1 PM ET Please join Parent Project Muscular Dystrophy and NS Pharma as we host a webinar Wednesday, February 22 at 1:00 PM EST to to provide an update on trial recruitment for NS Pharma's Exon 53 Skipping Program. Dr. Clemens and Lauren Morgenroth will review the study design and provide the most recent updates for the trial that is ongoing in the US.Speakers:Abby BronsonSenior Vice President of Research Strategy, Parent Project Muscular DystrophyPaula R. Clemens,…See More
Feb 16
connie lainez is now a member of PPMD Community
Oct 4, 2009

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
malachi
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
lenoir nc
State:
nc

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