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christine good
- Female
- Brookings, OR
- United States
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christine good's Groups
christine good's Discussions
Anyone go to UCLA?
Started Dec 6, 2010 0 Replies 0 Favorites
Retractile testicle
Started this discussion. Last reply by Lori Ware Jan 26, 2010. 2 Replies 0 Favorites
Horrible behavior
Started this discussion. Last reply by terri ellsworth Feb 14, 2010. 5 Replies 0 Favorites
christine good's Page
Latest Activity
christine good replied to Veronica E.'s discussion Anyone know of a program to assist with AFO purchases?"Shrinners Hospital is free
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christine good replied to Veronica E.'s discussion Suggestions - starting night splints tomorrow"alternate one boot at a time. Left one night and right the next."
christine good replied to Leeandra Arhdeacon's discussion clinical trial"frequent deletions in DMD. This is not necessarily an exhaustive list of repairable deletions.
Exon skipped
Potentially Repairable Deletions
51
45-50, 47-50, 48-50, 49-50, 50, 52
50
51, 51-53, 51-55
45
12-44, 18-44, 44, 46-47, 46-48, 46-49,…"
Profile Information
- About me:
- Wife, Mom of 3 and Physical therapist asst at local rehab.
- About my family:
- Husband Craig, Port Biologist for ODFW
Son Matt, 20, who is a freshman in college
daughter Jessie 13, budding artist and author/environmentalist
Son Kian, 10. Recently, Dx with DMD
- Name(s) of child(ren)/individual(s) with Duchenne:
- Kian
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- Brookings, OR
- Country:
- United States
christine good's Photos
Comment Wall (27 comments)
- At 8:17am on January 19, 2011,
Tracy Seckler said… - Hi Christine, I am trying to send you an email about the art gallery. I need each parent to sign a permission slip. The email was returned to me. Do you have a new email address? Thanks,
Tracy Seckler
- At 11:16pm on August 17, 2010,
Rahul Grover said… - Hi Christine, thanks for the welcome!
- At 11:03pm on May 1, 2010,
Janine said… - That is good. Did they recommend that your daughter still be tested for carrier status?
- At 12:45pm on May 1, 2010, Janine said…
- Christine,
Did you ever get your carrier test done? An old post came up and I wondered if you were able to get it done. Forgive me if you posted this already and I missed it.
Janine
- At 7:38pm on November 5, 2009,
Bill Cain said… - Hi Christine; We visitn he MDA clinic at UCSF even though the one at Stanford is closer. We were extremely distraught and disapointed by the way were treated there. UCSF have been fantastic as has Dr. Strober. We have Calum's treiennial IEP coming up in a few days and am at a loss (for the first time) what I should be asking for from the school district and what services Calum should be receiving. We are in the San Jose Union school district. Was wanting to know what others are receiving and if they think it is helping. There has been services I have refused, just don't see where they would help, just would mean he spent more time out of the classroom. Any suggestions would help: Thanks!!
- At 5:52pm on July 15, 2009,
Renee Azzouz said… - I will have to look into this -- which airline were the flights through? Thanks for the help
- At 5:51pm on July 14, 2009, Renee Azzouz said…
- Christine-- So you live in Oregon but went to Ohio-- what are they offering that the local specialists arent? Was it worth the trip?
- At 12:23am on June 3, 2009,
Wyatt's Mommy, Melissa said… - Christine, We probably saw either other and didn't know it. We've been home for about 4 days and I'm still recovering too. Wyatt did amazingly well on the plane for his first time. I'm feeling cautiously positive, which is the best I've felt in a few months. Keep in touch.
- At 11:04pm on May 7, 2009,
Leslie Guzman said… - Hi Christine!
The weather will be warm by then. So bring short sleeves, and a sweather just in case. Would love to meet you.
Leslie
- At 8:39pm on March 28, 2009,
Susan Hemphill said… - Hi Christine,
I haven't been on here in a while, but thanks for the welcome! We've been around PPMD since around 1995 - our son was diagnosed in 1992 at 2 1/2. Bill will be 20 in June (hard to believe), is in community college, almost has his driver's license (long story) and is doing very well. He walked until he was 16 and had heel cord surgery (his only surgery so far besides tonsillectomy). He has been taking Deflazacort every other day since he was 8 1/2. His heart function is fine and pulmonary is still at 83% - all in all, we can't complain too much!
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Events
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Paint for Peyton to end Duchenne
June 8, 2012 from 6:30pm to 7:30pm – Spirited Art
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