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cheng wei lin
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  • taichung city
  • Taiwan
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is any boy on phizer's trail?

Started Jun 6, 2016 0 Replies

dear moms and dads: my 3-years-old son was just diagnosed of duchenne  one monthe ago.It was so  overwhelming to hear that.    Doing some searches on the internet,I am now going to start him with…Continue

 

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cheng wei lin posted a discussion

is any boy on phizer's trail?

dear moms and dads: my 3-years-old son was just diagnosed of duchenne  one monthe ago.It was so  overwhelming to hear that.    Doing some searches on the internet,I am now going to start him with idebenone maybe 150mg  per day.However , I wish i can put him in some clinical trials as well.there are two new drugs which interest me most. Smt c1100 and phizer's anti-myostatin drug.Would like to know if your boys was on these trials? how are ours boys going? Can you give some advice about what…See More
Jun 6, 2016
cheng wei lin is now a member of PPMD Community
Jun 6, 2016

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
golden
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
taipei
State:
taiwan

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