bob
  • Male
  • Fond Du Lac, WI
  • United States
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bob's Discussions

Jonah died today

Started this discussion. Last reply by danielle Mar 23, 2015. 25 Replies

              I have two sons with DMD , but my oldest passed away this morning about 8:00.  He was a fantastic kid. I loved him so much and will miss him with all of my heart . Not even sure how I'm…Continue

Not sure about steriods

Started this discussion. Last reply by lisa burke Sep 23, 2012. 4 Replies

        My oldest son,Jonah, has DMD. He is almost thirteen and still walks some and uses a scooter at school. We stared prednisone back in July '08 and we've seen the side effects as you all know.…Continue

 

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Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
jonah and carter
Age(s) of child(ren)/individual(s) with Duchenne:
7-12, 13-18
City:
fond du lac
State:
wisconsin

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