I am 67 and live in Toronto. I am creative in art in many facets, and love to travel, as well as visit my children and grandchildren who live far away. I hope to get involved with PPMD and be there in whatever way I can to help my son and grandson in the years to come.
About my family:
I have a beautiful daughter, handsome son, and 3 wonderful grandchildren. My 5 year old grandson has Duchenne. He and my son live in Vancouver BC. My son is an amazing Dad and nothing is too much for him when it comes to his children and his son's care. I am very proud of his dedication and love.
Name(s) of child(ren)/individual(s) with Duchenne:
Hi Barbara! I just realized that I forgot to thank you for the comment you left on my page back in December. I really appreciate those kind words. My nephew and I do have a very strong relationship that I think may have become even stronger since his diagnosis. I guess it's one of those rare good things that comes out of knowing someone with such a terrible disease. He has taught me a lot about life and how to appreciate things even though he doesn't even realize it. He sure is an amazing little guy as are all of the little guys battling dmd.
Thank you for your kind comments. My life with DMD has beenenhanced and for that I am thankful- sounds strange I'm sure but it really is a unique set of bitter/sweet all wrapped up in one!
Having my son in my life everyday is a blessing!
welcome to a very valuable tool for anyone associated with DMD- this portal allows us a forum to use the emotional language we need at any given moment...
Lovely photo Motobeegeeohtoe!
Aren't we lucky this technology exists?
Let's hope the appropriate medical technology and future medical advances which are currently in existence can expedite a cure for Duchenne!
Welcome Barbara! I hope you find this site a tremendous support as I and my mom both have! I have watched my mother grieve as much as I have, knowing how much she loves my son I am glad she decided to join to find support. My son is 5 also (he will be 6 this month). This site and these wonderful 'family members' on PPMD have given me a hope for a cure that I didn't not have at the time of our diagnosis. I know that our boys will have a brighter future because we are here making a difference! I will keep your family in my prayers!
Mom... welcome and so glad you are here as a member!! You are going to find some fantastic resources and information...but it is a huge website...so take your time to look through everything. The best areas are the forums and groups which address so many subjects on real issues from real MD Parents and grandparents...! I think there may be a grandparents discussion group too. If not...maybe you can start one!